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Long COVID Severe → no benefitIll for 1 month

Bedridden and housebound with long COVID, no improvement in new symptoms

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill for
1 month
Last post
Nov 2024
In their words
  • Condition: Long COVIDi'm positive it's long covid this time In context ↗
  • At worst: Severei'm already used to being bedridden and housebound In context ↗
  • Now: No benefiti can feel myself starting to become unstable. i just want to SLEEP In context ↗
  • Began after: COVIDfinally went to the doctor and got a positive covid diagnosis + pneumonia
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Canyon 17130 believed they had long COVID after a COVID infection with pneumonia in October 2024, after a flu-like illness in September. By late November they could not sleep at all, with head zaps, tingling numbness, headaches resistant to painkillers, body aches, dizziness and eyestrain. They said they were already used to being bedridden and housebound and felt themselves becoming unstable. They had finished antibiotics and Paxlovid for the main illness, and no improvement in the new symptoms was reported.

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What they tried

Their words about each treatment
  • an antibiotic · Not saidwent on an antibiotic and paxlovid. those are done, the main illness is over In context ↗
  • pain meds · No changethe headaches are resistant to pain meds. In context ↗
  • melatonin · Not saidi have a bad history with melatonin so that's not an option. In context ↗
  • SSRIs · Not saidsymptoms i associate with SSRI withdrawal even though i'm taking all my meds regularly In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
October 2024COVID infection with pneumonia after a flu-like illnesslast month i thought i got the flu again. worse this time In context ↗Not stated
2024-11-27unable to sleep, head zaps, numbness, headaches, dizzinessi can feel myself starting to become unstable. i just want to SLEEP In context ↗Severe

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsas of two days ago i started being unable to sleep In context ↗
  • Headaches & migrainethe headaches are resistant to pain meds In context ↗
  • Pain & fibromyalgiathe body aches will generally go away for a while but not always In context ↗
  • Neuropathy & tinglinghead zaps and false numbness (tingly and prickly but not actually numb, mostly in my arms and legs) In context ↗
  • POTS & dysautonomiaflashes of dizziness when i'm just walking around or trying to eat/drink In context ↗
  • Anxiety & low moodi have really bad medical anxiety In context ↗
  • Vision problemsnow i've got some weird eyestrain going on In context ↗

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