ME/CFS
Moderate → no benefit
Mostly homebound with ME/CFS, still crashing after chores and no better
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Apr 2018
In their words
- Condition: ME/CFS
Lately my chronic migraines and fibromyalgia have been hammering me pretty hard.
In context ↗ - At worst: Moderate
When you are mostly homebound it can start to feel like you’re an island.
In context ↗ - Now: No benefit
I am definitely going to take it easy today. ... Today is a bed day, though.
In context ↗
Summary
Horizon 11193 wrote in 2018 about living with chronic migraines and fibromyalgia while mostly homebound, pacing with 20 minutes of activity followed by an hour of rest. After pushing through chores they crashed, their limbs feeling like they weighed 100 pounds and breathing tiring. They spent the next day in bed taking it easy, wondering whether a sore throat meant they were fighting a bug.
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What they tried
Also tried
Their words about each treatment
- Purefit adjustable wedge system · Helped
helps a lot supporting me in different positions
In context ↗ - Caffeine · Not said
I tried caffeine, chicken bone broth, American ginseng, tons of water
In context ↗ - nuvaring · Not said
I leave the nuvaring in so I can skip periods
In context ↗ - 20 minutes work then rest for an hour · Helped
I usually have a rule where if I work on something for 20 minutes then rest for an hour it’s okay
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | living with chronic migraines and fibromyalgia, mostly homeboundLately my chronic migraines and fibromyalgia have been hammering me pretty hard.In context ↗ |
| 2018-04-27 | crashed after pushing through chores; limbs heavy, breathing tiringall of a sudden all my limbs felt like they weighed 100 pounds. Even breathing feels tiring.In context ↗ |
| 2018-04-28 | bed day, taking it easy to avoid a worse crashToday is a bed day, though. After yesterday I don’t want to take any chances.In context ↗ |
Symptoms mentioned
BreathlessnessFlu-like symptomsHeadaches & migraineMuscle weaknessPain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Headaches & migraine
my chronic migraines and fibromyalgia have been hammering me pretty hard
In context ↗ - Post-exertional malaise
all of a sudden all my limbs felt like they weighed 100 pounds
In context ↗ - Muscle weakness
all my limbs felt like they weighed 100 pounds
In context ↗ - Breathlessness
Even breathing feels tiring.
In context ↗ - Flu-like symptoms
I woke up with a sore throat
In context ↗