Long COVID
Moderate → relapsedIll 3.5 years before improving or writingNeeds ongoing treatment
Long COVID with brain fog and POTS, briefly better then worse after fludrocortisone
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3.5 years
- Last post
- Mar 2026
In their words
- Condition: Long COVID
I've been hauling for 2.5 years and it's still here.
In context ↗ - At worst: Moderate
I had an extremely bad reaction to it, completely exhausting me and making me the worst I've ever been.
In context ↗ - Now: Relapsed
I was healthy enough to occasionally go outside and play competitive video games ... completely exhausting me and making me the worst I've ever been.
In context ↗ - Began after: COVID
I've been hauling for 2.5 years and it's still here.
In context ↗
Read from 17 of their posts and comments; links to the 15 this page draws on
Summary
Prairie 72968 had long COVID for at least 2.5 years, with brain fog, POTS, exercise-worsened symptoms and low mood. Propranolol helped tachycardia and anxiety, guanfacine briefly cleared cognition but caused low blood pressure and muscle weakness, and LDN helped with tiredness. A fludrocortisone trial caused an extremely bad reaction, leaving them the worst they had been and doing pretty much nothing by March 2026.
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What they tried
What they credit
Also tried
Their words about each treatment
- Ivabradine · Not said
Propranolol has been amazing for me even better than Ivabradine
In context ↗ - Propranolol · Helped a lot
Propranolol has been amazing for me even better than Ivabradine. Been on it for two years and it still works exactly the same.
In context ↗ - eating super healthy and cutting a bunch of shit out my diet · Helped
decided to eat super healthy and cut a bunch of shit out my diet which made my symptoms better
In context ↗ - exercise 30 mins a day · Worse
I only exercise for about 30 mins a day to treat pots ... the problem is when I do that I can not longer think well at all
In context ↗ - guanfacine · Helped
The first 20 days I felt slow but two months in I felt the most cognitively clear I've felt in years I had to quit tho because it made my blood pressure too low
In context ↗ - nac · Helped
I just started nac and guanfacine 15 days ago ... Had a little more brain fog and tiredness the first week but now I feel way better and feel more real
In context ↗ - ldn · Helped
still on ldn and I feel it helps me not feel as tired
In context ↗ - fludrocortison · Much worse
I tried fludrocortison and I had an extremely bad reaction to it, completely exhausting me and making me the worst I've ever been
In context ↗ - doing pretty much nothing · Helped
I used to get this from walking around the block and no longer have it now that I do pretty much nothing
In context ↗
Approaches: Diet · Other drugs and medicines · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2022 | Long COVID onsetI've been hauling for 2.5 years and it's still here.In context ↗ | |
| about 2023-05 | Started propranolol; helped tachycardia, shakiness and anxiety and allowed competitive video gamesPropranolol has been amazing for me even better than Ivabradine.In context ↗ | Propranolol (Inderal) |
| 2024-11-26 | Plateaued on improvements but still miserableI've plateaued on improvements and still miserable and treatments seem so far out.In context ↗ | |
| 2024-12-28 | Daily exercise for POTS worsened brain fogthe problem is when I do that I can not longer think well at all much more confusion and brain fog etc.In context ↗ | Everyday exercise and activity |
| 2025-01-20 | Cut foods from diet; symptoms improved but lost weightdecided to eat super healthy and cut a bunch of shit out my diet which made my symptoms betterIn context ↗ | |
| 2025-02-05 | Started NAC and guanfacine; after a worse first week felt better and more realHad a little more brain fog and tiredness the first week but now I feel way better and feel more real.In context ↗ | Guanfacine |
| 2025-05-01 | Stopped guanfacine after low blood pressure, erectile dysfunction and extreme muscle weaknessI had to quit tho because it made my blood pressure too low and gave me erectile dysfunction and extreme muscle weakness.In context ↗ | Guanfacine |
| 2025-06-07 | Started LDN; had all the listed symptoms and more brain fogI just started too and I have all those symptoms as well, a lot of brain fog rn.In context ↗ | Low-dose naltrexone |
| 2025-09-22 | On LDN for months and felt at worstI've been on ldn for several months and I'm at my worst right now as I continueIn context ↗ | |
| about 2025-11 | Fludrocortisone caused an extremely bad reaction and worst-ever stateI tried fludrocortison and I had an extremely bad reaction to it, completely exhausting me and making me the worst I've ever been.In context ↗ | Fludrocortisone / Florinef |
| 2025-12-05 | Off LDN for a week due pharmacy; felt withdrawal-like negative differencebeing off of it definitely feels like withdrawals because I'm no longer being assisted by a medication.In context ↗ | Low-dose naltrexone |
| 2025-12-17 | Better; LDN helped with tiredness and MCAS was part of fatigue and POTSI'm better I was getting worse for a completely different reason, still on ldn and I feel it helps me not feel as tired.In context ↗ | Low-dose naltrexone |
| 2026-03-02 | Doing pretty much nothing; avoids walking and visual symptoms only with walkingI used to get this from walking around the block and no longer have it now that I do pretty much nothing.In context ↗ |
Adverse events
- Everyday exercise and activity“it helps my heart rate slow down when I do it every day ... I can not longer think well at all much more confusion and brain fog etc.” In context ↗ Made symptoms worse
- Guanfacine“Had a little more brain fog and tiredness the first week” In context ↗ Side effects
- Guanfacine“first week my blood pressure was too low and I couldn't think well, drive, or play video games at all” In context ↗ Low blood pressure or fainting
- Guanfacine“I had to quit tho because it made my blood pressure too low and gave me erectile dysfunction and extreme muscle weakness.” In context ↗ Side effects
- Low-dose naltrexone“I just started too and I have all those symptoms as well, a lot of brain fog rn.” In context ↗ Made symptoms worse
- Low-dose naltrexone“I've been on ldn for several months and I'm at my worst right now as I continue” In context ↗ Made symptoms worse
- Fludrocortisone / Florinef“I tried fludrocortison and I had an extremely bad reaction to it, completely exhausting me and making me the worst I've ever been.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogHeart symptoms & palpitationsMast cell (MCAS) & allergiesPOTS & dysautonomiaPost-exertional malaiseVision problems
Their words about their symptoms
- Post-exertional malaise
Brain fog gets worse when Ive been exercising consistently
In context ↗ - Brain fog
a lot of brain fog rn
In context ↗ - POTS & dysautonomia
I had no idea that was a huge part of my fatigue and pots.
In context ↗ - Heart symptoms & palpitations
heart rate goes up and stays up
In context ↗ - Anxiety & low mood
I've plateaued on improvements and still miserable
In context ↗ - Mast cell (MCAS) & allergies
I would recommend seeing if you have mcas because I had no idea that was a huge part of my fatigue and pots.
In context ↗ - Vision problems
I used to get this from walking around the block and no longer have it now that I do pretty much nothing.
In context ↗
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