Long COVID with PEM crashes, improved with leave and warmth, then relapsed after a cold
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 7 months
- Last post
- Mar 2023
In their words
- Condition: Long COVID
I got a cold in the beginning of january and it made all my long covid symptoms worse again
In context ↗ - At worst: Moderate
a couple months ago I tried to do a cardio workout and my heart rate fell to 45 and I had to lay down so I wouldn’t pass out
In context ↗ - Now: Relapsed
some breaks in december when I was doing better but I got a cold in the beginning of january and it made all my long covid symptoms worse again
In context ↗ - Began after: COVID
when I caught covid!
Summary
A 25-year-old with long COVID since 2022 began crashing with PEM and ME/CFS-like symptoms in cycles of working and crashing after going straight back to work. More covid leave and a warmer climate helped, but a cold in January 2023 made everything worse. By March 2023 they were still suffering nausea, fatigue, headaches, tinnitus, pain, sensory sensitivity and memory problems, able to do some stretching and slow yoga/pilates lying down.
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What they tried
What they credit
Their words about each treatment
- cardio workout · Worse
I tried to do a cardio workout and my heart rate fell to 45 and I had to lay down so I wouldn’t pass out
In context ↗ - stretching and slow yoga/pilates laying down · Not said
recently I’ve been able to do some stretching and really slow yoga/pilates laying down
In context ↗ - warmer climate · Helped
went to a warmer climate for a couple weeks and started feeling better
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | caught COVID-19I was stressed at work too when I caught covid!In context ↗ | Not stated | |
| late 2022, after the acute illness | went straight back to work and began crashing with PEM in cycles of working and crashingafter I got better from the acute sickness I jumped straight back into work and that’s when I started crashingIn context ↗ | Mild | |
| late 2022 | took more covid leave and spent a couple of weeks in a warmer climate; better in Decemberwent to a warmer climate for a couple weeks and started feeling betterIn context ↗ | Mild | Altitude and climate change of location |
| January 2023 | crashed after a cold made all long COVID symptoms worseI got a cold in the beginning of january and it made all my long covid symptoms worse againIn context ↗ | Moderate | |
| March 2023 | still daily symptoms; only gentle stretching and slow yoga lying downsince that cold in January I’ve been suffering a lot with the LC symptomsIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I started crashing w PEM symptoms / ME/CFS symptoms in a couple week intervals of working and crashing
In context ↗ - Gut problems
every day, all day since Sept 2022
In context ↗ - Headaches & migraine
Nausea, fatigue, headaches, tinnitus, body aches and joint pain
In context ↗ - Tinnitus
headaches, tinnitus, body aches and joint pain
In context ↗ - Pain & fibromyalgia
body aches and joint pain
In context ↗ - Light & noise sensitivity
light/sound/skin sensitivity
In context ↗ - POTS & dysautonomia
my heart rate fell to 45 and I had to lay down so I wouldn’t pass out
In context ↗
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