ME/CFS with relapses and PEM on walks, now much better after trauma-release course
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 25 years
- Last post
- Nov 2025
In their words
- Condition: ME/CFS
I'm 25 years of CFS.
In context ↗ - At worst: Moderate
when I was really sick I was off on 60% pay for a long time
In context ↗ - Now: Much better
gone from 35% to 85%
In context ↗
Read from 27 of their posts and comments; links to the 14 this page draws on
Summary
Cove 17360 has had ME/CFS since the 1990s. They reached about 80% but declined over a decade, with relapses after a COVID jab and COVID and worsening from divorce, death and surgeries. Since September 2024 the ReleaseCFS somatic trauma-release course has taken them from 35% to 85%, and they no longer get PEM on 45-60 minute walks. Fatigue, poor sleep and tinnitus remain.
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What they tried
What they credit
Also tried
Their words about each treatment
- Garmin watch · Not said
I gave a garmin watch. My body battery normally starts first thing at around 28 to 38 percent
In context ↗ - perrin technique · No change
I tried the perrin technique but it didn't work for me.
In context ↗ - LDN · Helped
I started on 0.5mg then increased by 0.5mg every 2 weeks ... at 2mg it made a difference
In context ↗ - somatic work / ReleaseCFS course · Helped a lot
I've been doing that for 14 months and gone from 35% to 85%
In context ↗ - journaling · Helped
Journaling is important to bring the repressed emotions up from your subconscious
In context ↗ - meditation, yoga nidra and breathwork · Helped
After I go to a 2 hour meditation class tho I slerp really well
In context ↗ - tapping (EFT) · Helped
I also tapped in the fear of never recovering.
In context ↗ - walking · Helped
Yes I did work up to it but probably jumped the gun a bit in terms of length.
In context ↗ - cranial osteopathy · Not said
my cranial osteo can feel quite a difference too
In context ↗ - chromium · Helped
Have you tried taking chromium for a month. Really helps with my blood sugar issues.
In context ↗ - getting rid of mold · Not said
I've also spent 25 years getting rid of mold in my system
In context ↗ - healing my gut · Not said
healing my gut and other things over the last 25 years
In context ↗ - COVID vaccination as treatment · Worse
Big relapses with covid jab and then covid etc.
In context ↗
Approaches: Brain retraining · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 25 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 1990s | CFS beganI also got CFS in the 90sIn context ↗ | Not stated |
| 1990s | too ill to work, on sick paywhen I was really sick I was off on 60% pay for a long timeIn context ↗ | Moderate |
| before 2020 | reached about 80% of former functionGot to about 80% but always struggling with the fatigueIn context ↗ | Mild |
| 2020-2022 | relapses after COVID jab and then COVIDBig relapses with covid jab and then covid etcIn context ↗ | Mild |
| about 2015 to 2024 | steady decline after divorce, deaths and surgeriesgetting worse every year over the past 10 yearsIn context ↗ | Mild |
| September 2024 | started ReleaseCFS somatic courseI've been doing it since Sept 2024 and making good progressIn context ↗ | Moderate |
| 2025-04-04 | 75% healed after six months of somatic workI'm 75% healed after 25 years of CFS having started somatic work 6 months agoIn context ↗ | Mild |
| 2025-05-25 | walking 45-60 minutes without PEMdon't seem to get PEM when I go for a walk of say 45 to 60 minsIn context ↗ | Mild |
| 2025-11-13 | about 85% of former functionI've been doing that for 14 months and gone from 35% to 85%In context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“Big relapses with covid jab and then covid etc.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I have no PEM anymore and amd getting better after many years
In context ↗ - Sleep problems
I still have some mind-body symptoms like tinnitus and a sore shoulder but haven't had PEM for some time now
In context ↗ - Tinnitus
I still have some mind-body symptoms like tinnitus and a sore shoulder
In context ↗
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