ME/CFS
Moderate → no benefit
Migraines and chemical sensitivities with ME/CFS, tried anti-inflammatories and baths
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Apr 2023
In their words
- Condition: ME/CFS
This issue of a UK ME research magazine mentions neuroiflammation in ME, which makes sense to me
In context ↗ - At worst: Moderate
I used to be able to make my own shakes but that ship has now sailed ... I take a bath about once a day, even kf I dont have energy to wash/clean
- Now: No benefit
These seem to be getting worse, and ridiculous.
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Marsh 84392, posting in an ME/CFS forum, described a swollen feeling in their skull, migraines and worsening chemical sensitivities, with caffeine, chocolate, weak coffee and smells triggering migraines or cotton head. Inflammatory marker tests for suspected lupus were negative, but anti-inflammatories and big doses of pain relievers eased pain and gave energy. They took daily baths for pain and were prescribed Altraplen shakes in the UK; cetirizine did little.
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What they tried
Also tried
pain relievers· Helped a lotanti-inflammatories· Helpedbath· HelpedCeririzine Hydrochloride· No changeAltraplen by Nualtra· Not said
Their words about each treatment
- anti-inflammatories · Helped
how can antiinflammatories help me as much as they do? ... My head sometimes leaks after I've taken them!
In context ↗ - pain relievers · Helped a lot
A big dose of pain relievers and an hours wait can get me from deaths door to hoovering the carpet.
In context ↗ - bath · Helped
I take a bath about once a day ... It eases pain
In context ↗ - Altraplen by Nualtra · Not said
I'm in the UK and been prescribed the Altraplen by Nualtra. It tastes OK but it's quite sweet
In context ↗ - Ceririzine Hydrochloride · No change
Ceririzine Hydrochloride doesnt seem to do much
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022-12-12 | ill in an ME/CFS forum, inflammatory markers repeatedly negativeI've 2 or 3 times been tested for inflammatory markers when I thought I might have Lupus and it was always negativeIn context ↗ | Mild |
| 2023-04-13 | chemical sensitivities worseningThese seem to be getting worse, and ridiculous.In context ↗ | Moderate |
Adverse events
- “My head sometimes leaks after I've taken them!” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I know caffeine gives me migraines but I swear I now get migraines (or cotton head) from just chocolate, or a weak Camp coffee, or even smells
In context ↗ - Brain fog
I now get migraines (or cotton head)
In context ↗ - Mast cell (MCAS) & allergies
Chemical sensitivities? These seem to be getting worse, and ridiculous.
In context ↗