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Long COVID Moderate → much betterIll 18 months before improving or writingNeeds ongoing treatment

Unable to work with long COVID, now much better and back at work after sauna and walking

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
18 months
Last post
Jan 2025
In their words
  • Condition: Long COVIDMy first bout of LC lasted ten weeks. In context ↗
  • At worst: ModerateI went from walking 200 meters at a time to being able to do 5km in one walk. In context ↗
  • Now: Much betternow I'm finally able to return to work! ... Four months ago I couldn't even drive around in my neighbourhood without getting dizzy, brainfoggy, and tired. Now I can do up to 60km/h, but at highway speeds it's to much.
  • Began after: COVIDMy first bout of LC lasted ten weeks. In context ↗
Read from 22 of their posts and comments; links to the 14 this page draws on

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Summary

Otter 76107 had two bouts of long COVID. The first lasted ten weeks and cleared after a reinfection from their girlfriend; the second left them unable to work and walking only 200 m at a time. Weekly sauna, gradually increasing walking and repeated boosters brought slow gains, and by December 2024 they were able to return to work, though cognitive limits and trouble with fast movement remained in January 2025.

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Asking aboutOtter 76107’s story

What they tried

Their words about each treatment
  • walking exercise · Helped a lotI went from walking 200 meters at a time to being able to do 5km in one walk. In context ↗
  • sauna · HelpedI have definitely felt better for doing it. In context ↗
  • pacing · Not saidI still have to be careful and pace myself, but my limits are steadily moving. In context ↗
  • anti-histamines · HelpedI would say that anti-histamines have helped somewhat, but it's so hard to say what causes what. In context ↗
  • mRNA vaccine shots and boosters · Helped a lotI get every booster I can get, and they help. In context ↗
  • Belegarth boffering · HelpedThe last remaining bits disappeared after I took part in an intense weekend of boffering. In context ↗
  • Venlafaxin · HelpedMy GP increased my Venlafaxin to 2x75mg per day, and I think it helped. In context ↗
  • nicotine patches · Not saidThe ramping up coincided with me walking more and more and starting on nicotine patches, so it's hard to tell which did what. In context ↗

Approaches: SNRIs · Alternative therapies · Exercise and activity · Vaccination

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetfirst bout of long COVIDMy first bout of LC lasted ten weeks. In context ↗Not stated
2.5 moCOVID reinfection from girlfriend; symptoms disappearedThen I got another COVID infection from my girlfriend, felt sick for a day or so, and was symptom-free thereafter. In context ↗Recovered
—second bout of long COVIDAfter my first LC I got back to it relatively quickly. This second one is tougher. In context ↗Not stated
early oncould not tolerate even the 60C sauna and walked only 200 m at a timeI went from walking 200 meters at a time to being able to do 5km in one walk. In context ↗Moderate
2024-09-29walking up to 5 km in one walk and tolerating the 90C humid saunaAt first I could not even tolerate the 60C sauna ... now I can actually do the Aufguss where they pour water on the stones. In context ↗MildWalking
2024-11-09able to walk about half an hour without getting sweatyOne is how long I can walk without getting sweaty, which is now about half an hour rather than a few minutes. In context ↗MildCOVID vaccination as treatment
2024-12-11able to return to workAnd now I'm finally able to return to work! In context ↗Mild
2025-01-29can drive up to 60 km/h but not at highway speedsFour months ago I couldn't even drive around in my neighbourhood without getting dizzy, brainfoggy, and tired. Now I can do up to 60km/h, but at highway speeds it's to much. In context ↗Mild

Adverse events

  • Hyperthermia and sauna“At first I could not even tolerate the 60C sauna ... "60C sauna makes me crash"” Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI am ok as long as I don't do too much In context ↗
  • Brain fogbut cognitive things are hard In context ↗
  • Headaches & migrainewill eventually give me headaches In context ↗
  • POTS & dysautonomiawithout getting dizzy, brainfoggy, and tired In context ↗
  • Heart symptoms & palpitationsheart palpitations are a good indicator of having overdone it In context ↗
  • Gut problemsnausea (from motion) In context ↗
  • Light & noise sensitivityI'm still input sensitive In context ↗
  • Temperature regulationI early on got cold hands and feet whenever I did computer stuff In context ↗

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