Long COVID brain, muscle and fatigue for four years, now near normal after INUSpheresis
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4 years
- Last post
- Aug 2026
In their words
- Condition: Long COVID
I am a LC survivor. You can be one too.
In context ↗ - At worst: Moderate
After 4 years of being on/off sick (and 4 rounds of COVID) ... my day literally ended at 3pm
- Now: Near normal
LC 90% gone. And since then I am better. I finally startd the gym 2 months ago on a regular basis.
In context ↗ - Began after: COVID
first time i had long covid that messed me up
In context ↗ - Says they never had: Brain fog
My most concerning symptom was my brain (not talking about brain fog)
Read from 10 of their posts and comments; links to the 9 this page draws on
Summary
They had COVID four times and were on and off sick for about four years, with brain, muscle and fatigue problems and a Lyme diagnosis. Ozone treatment and other measures helped partly, then an infection and a major flare-up in early 2025 set them back. They travelled from the UK to Austria for INUSpheresis, felt clearer within days, and later reported long COVID about 90% gone and regular gym visits.
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What they tried
What they credit
Also tried
Their words about each treatment
- clean protocol (no gluten, no eggs, etc) · Helped
which i got better through a clean protocol (no gluten, no eggs, etc) and some herbs
In context ↗ - AIP protocol · Not said
First thing I did when I had lond covid was going into an AIP protocol.
In context ↗ - Ozone treatment · Helped
at the time I thought I got better (and i did) by doing lots of treatments inc Ozone treatment
In context ↗ - Eboo · No change
i also had Eboo which is a type of filtering where they add ozone but that one did not move the needle
In context ↗ - peptides and injectables · Not said
Like you I also did (and do) lots of peptides and injectables
In context ↗ - antibiotics · Not said
I needed to go deeper than supplements or antibiotics
In context ↗ - inuspheresis · Helped a lot
I went to Austria for inuspheresis treatment to remove the proteins my body couldn’t clear on its own.
In context ↗ - protocol with supplements and other treatments · Not said
They’ve started me on a protocol with supplements and other treatments that I’ll be following for the next eight months
In context ↗ - PMF · Not said
I am also trying PMF now, with their approval
In context ↗ - detox · Not said
I have been doing lots of detox for the past 2 years
In context ↗
Approaches: Apheresis
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 18 months after onset: the story doesn’t say how ill they were before that. 1 step has no time and sits in story order between the steps around it. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | Long COVID after first COVID infectionfirst time i had long covid that messed me upIn context ↗ | Not stated | |
| 2023 | Worst period, diagnosed with Lyme disease2 years ago was the worst (was diagnosed w lyme disease)In context ↗ | Moderate | |
| 2023-2024 | Partly better with treatments including ozone, but never back to old energyat the time I thought I got better (and i did) by doing lots of treatments inc Ozone treatmentIn context ↗ | Mild | Ozone therapy and EBOO |
| early 2025 | Small infection followed by a massive flare-up; day ended at 3pmSurely a few months ago I was diagnosed with a small infection and I got worse againIn context ↗ | Moderate | |
| 2025-05 | INUSpheresis in Austria; clarity and brain working againthe moment I walked out of the clinic, I already felt a weight lift off my shouldersIn context ↗ | Mild | HELP apheresis / plasmapheresis |
| 2025-09 | Started a 9-month rebuild protocol; brain functioning but not 100%I am still not 100% but my brain is functioning, and that is already a lot!In context ↗ | Mild | HELP apheresis / plasmapheresis |
| 2026-08-16 | Long COVID about 90% gone, back at the gym regularlyLC 90% gone. And since then I am better. I finally startd the gym 2 months ago on a regular basis.In context ↗ | Near normal | HELP apheresis / plasmapheresis |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
My symptons are (or were) also mostly mental, fatigue, muscle pain.
In context ↗ - Breathlessness
and some lung compromise as well
In context ↗
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