Very sick with long COVID, somewhat better with minocycline and hydroxychloroquine
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 3 years
- Last post
- Apr 2025
In their words
- Condition: Long COVID
mystery illness assumed to be long covid
In context ↗ - Now: Somewhat better
I’ve been on minocycline and hydroxychloroquine since May of last year with very good success
In context ↗ - Began after: COVID
I believe it all started with covid
Summary
After COVID and unrelated surgery they became very sick, and black mould was later found in their home. Assumed to be long COVID, their illness had more joint and muscle trouble than usual, and Lyme testing showed two positive bands. Since May 2024 minocycline and hydroxychloroquine have brought very good success, with symptoms slowly calming down after years of hell.
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What they tried
What they credit
Also tried
Their words about each treatment
- listening to this on YouTube · Helped
I have been listening to this on YouTube, it’s really helped me calm down my nervous system and not add to the chaos.
In context ↗ - minocycline · Helped
I’ve been on minocycline and hydroxychloroquine since May of last year with very good success.
In context ↗
Approaches: Antibiotics · Other drugs and medicines
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| onset | got COVID, then surgery for an unrelated issueI got covid then had to have surgery for unrelated issueIn context ↗ | |
| — | became very sick after recovering from surgeryI recovered from surgery and then got very sick, all the suddenIn context ↗ | |
| 2025-02-12 | symptoms slowly calming down on Lyme treatmentI’m treating Lyme and everything is slowly calming downIn context ↗ | Minocycline |
| 2025-04-04 | very good success on minocycline and hydroxychloroquineI’ve been on minocycline and hydroxychloroquine since May of last year with very good successIn context ↗ | Minocycline |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
it seemed like I had more joint and muscle issues than most people with long covid
In context ↗
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