Long COVID
Severe → near normalIll 2.5 years before improving or writingNeeds ongoing treatment
Bedbound with long COVID for 2+ years, now nearly back to normal after a healing centre
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2.5 years
- Last post
- Mar 2025
In their words
- Condition: Long COVID
I’ve been Long hauling for 18 months
In context ↗ - At worst: Severe
I quickly became bedbound due to extreme fatigue
In context ↗ - Now: Near normal
90% recovered after 2.5 years —severe ME/CFS
In context ↗ - Began after: COVID
in July of 2022, I came down with Covid
In context ↗
Read from 12 of their posts and comments; links to the 6 this page draws on
Summary
Max developed long COVID in July 2022 after a gym workout 10 days post-infection and became bedbound for 2+ years with a 24/7 headache, POTS, severe PEM and suicidal thoughts. They spent tens of thousands of dollars on diets, HBOT, LDN, ECT, peptides and medications without lasting benefit. In November 2024 they went to a healing centre in Guatemala; by March 2025 they reported running over an hour a day and taking only their POTS medication.
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What they tried
What they credit
Also tried
Guillermo’s program at the Humanidad healing center· Helped a lotcarnivore diet· Helped · wore offGAPS diet· Helped · wore offElectro Convulsive Therapy (ECT)· Helped · wore offayahuasca sessions· HelpedLexapro· No changelow inflammation diet· No changedietician and physician who specialize in gut health· No changegym workout· Much worseInjecting peptides (TB500 and several others)· Not saidhard chamber HBOT· Not saidSobriety/Going to rehab· Not saidphysical therapy at the Hruska clinic· Not saidin-patient psychiatric hospital· Not saidUCLA and University of Washington Long Covid Clinics· Not saidLow dose naltrexone· Not saidMassage/Chiropractic/Body Work/Myofascial Release/Acupuncture· Not saidTalk/Touch Somatic Therapy· Not saidMoving back to my hometown· Not saidTestosterone Replacement Therapy· Not saidOzone IV therapies· Not saidCastor Oil Packs· Not saidNicotine Gum· Not saidBotox injections· Not saidLong Covid Coach· Not saidTalk therapy/seeing a psychiatrist· Not saidwell respected healers· Not saidCountless supplements· Not saidEffexor· Not saidMemantine· Not saidTopomax· Not saidCodeine· Not saidEmgality· Not saidMestinon· Not saidPropanolol· Not saidTrazodone· Not saidXanax· Not saidPrescription Ketamine· Not said
Their words about each treatment
- Lexapro · No change
I took a dose of Lexapro but the symptoms didn’t go away
In context ↗ - gym workout · Much worse
10 days after my infection date I felt like I had recovered enough so I decided I would go to the gym and work out—this is when my life changed
In context ↗ - low inflammation diet · No change
I’ve been on a low inflammation diet for about a month and I’m gaining weight and not noticing symptom relief
In context ↗ - carnivore diet · Helped
I noticed the largest improvements in my symptoms from these diets ... the relief I had was short lived before things went back to normal
In context ↗ - Injecting peptides (TB500 and several others) · Not said
Injecting peptides (TB500 and several others)
In context ↗ - hard chamber HBOT · Not said
50+ hard chamber HBOT treatments
In context ↗ - Sobriety/Going to rehab · Not said
Sobriety/Going to rehab
In context ↗ - physical therapy at the Hruska clinic · Not said
Traveling to Nebraska for state of the art physical therapy at the Hruska clinic
In context ↗ - in-patient psychiatric hospital · Not said
Spent 2 months at in-patient psychiatric hospital due to severe suicidality
In context ↗ - Electro Convulsive Therapy (ECT) · Helped
resulted in a temporary relief from depression but also issues of memory loss
In context ↗ - UCLA and University of Washington Long Covid Clinics · Not said
Being a patient of both the UCLA and University of Washington Long Covid Clinics
In context ↗ - Low dose naltrexone · Not said
Low dose naltrexone (up to 9mg daily)
In context ↗ - Massage/Chiropractic/Body Work/Myofascial Release/Acupuncture · Not said
Massage/Chiropractic/Body Work/Myofascial Release/Acupuncture
In context ↗ - Talk/Touch Somatic Therapy · Not said
Talk/Touch Somatic Therapy
In context ↗ - Moving back to my hometown · Not said
Moving back to my hometown so my parents could help take care of me
In context ↗ - Testosterone Replacement Therapy · Not said
Testosterone Replacement Therapy
In context ↗ - Ozone IV therapies · Not said
Ozone IV therapies
In context ↗ - Castor Oil Packs · Not said
Castor Oil Packs
In context ↗ - Botox injections · Not said
Quarterly Botox Injections for Migraines
In context ↗ - Long Covid Coach · Not said
Hiring a “Long Covid Coach”
In context ↗ - Talk therapy/seeing a psychiatrist · Not said
Talk therapy/seeing a psychiatrist
In context ↗ - dietician and physician who specialize in gut health · No change
Working with a dietician and physician who specialize in gut health- neither of these moved the needle much
In context ↗ - well respected healers · Not said
Working with several different well respected healers with a variety of disciplines
In context ↗ - Countless supplements · Not said
Countless supplements
In context ↗ - Effexor · Not said
Effexor (highest dose) for depression
In context ↗ - Memantine · Not said
Memantine/Topomax/Codeine and Emgality/Botox injections for migrianes
In context ↗ - Mestinon · Not said
Mestinon/Propanolol for POTS
In context ↗ - Trazodone · Not said
Trazodone for sleep
In context ↗ - Xanax · Not said
Xanax and Prescription Ketamine for comfort
In context ↗ - Kambo · Helped
6 sessions of Kambo
In context ↗ - ivermectin · Helped
intense anti parasite protocols involving the chemicals ivermectin and mendezol
In context ↗ - enemas · Helped
98 total enemas to flush out parasites
In context ↗ - chlorine dioxide solution · Helped
I also drank chlorine dioxide solution to oxygenate my body and used CDS in the enemas as well
In context ↗ - ayahuasca sessions · Helped
periods of isolation accompanied by ayahuasca sessions to assist in tapping into and letting go of really unpleasant emotions
In context ↗ - Guillermo’s program at the Humanidad healing center · Helped a lot
After completely following Guillermo’s program (which could be different for everyone), I slowly but surely healed my physical and emotional ailments and am now running over an hour a day
In context ↗
Approaches: Alternative therapies · Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| July 2022 | came down with Covidin July of 2022, I came down with CovidIn context ↗ | Mild |
| July 2022 | crashed after a gym workout 10 days post-Covid, became bedboundI quickly became bedbound due to extreme fatigueIn context ↗ | Severe |
| 2024-01-08 | exercised too soon and went back to square oneI’ve been Long hauling for 18 months but I’ve had times where I almost recovered but then exercised too soon and went back to square oneIn context ↗ | Severe |
| March 2025 | running over an hour a day, only POTS medication leftam now running over an hour a day and the only medication I still take is my POTS medicationIn context ↗ | Near normal |
Adverse events
- Escitalopram (Lexapro)“In less than a month I reduced my 30mg Lexapro daily dose to zero and immediately started having nonstop suicidal thoughts.” In context ↗ Withdrawal problems
- Escitalopram (Lexapro)“I took a dose of Lexapro but the symptoms didn’t go away. The opposite occurred, slowly but surely my already fragile health began to unravel.” In context ↗ Made symptoms worse
- “2 courses of Electro Convulsive Therapy (ECT), the strongest and most extreme treatment in the world for depression which resulted in a temporary relief from depression but also issues of memory loss” In context ↗ Side effects
- Anti-inflammatory diet“I’ve been on a low inflammation diet for about a month and I’m gaining weight and not noticing symptom relief.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodHeadaches & migraineHeart symptoms & palpitationsPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
my PEM would result in me needing to stay in bed for a week with my eyes closed
In context ↗ - Headaches & migraine
I also quickly developed a 24/7 migraine in my forehead area
In context ↗ - POTS & dysautonomia
I also developed POTS
In context ↗ - Heart symptoms & palpitations
my tachycardia was so severe it prevented me from doing anything
In context ↗ - Anxiety & low mood
immediately started having nonstop suicidal thoughts
In context ↗ - Pain & fibromyalgia
I felt like I was too fatigued and in too much pain to confidently interact with others
In context ↗ - Sleep problems
-Trazodone for sleep
In context ↗
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