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Long COVID Mild → near normalIll 6 months before improving or writing

Long COVID with gut and burning leg symptoms, now near normal after mind-body work

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
6 months
Last post
Aug 2026
In their words
  • Condition: Long COVIDI got Long Covid a year ago and had gotten down to 0.6mg. In context ↗
  • At worst: MildWhen I left I had daily inflammation in my intestines, minor gastritis, general GI problems, histamine intolerance, fatigue. In context ↗
  • Now: Near normalI recovered from Long COVID symptoms twice but never posted here because I was, and am now again, tapering from benzos so I still wasn't 100%. In context ↗
  • Began after: COVIDI got Long Covid a year ago In context ↗
Read from 15 of their posts and comments; links to the 11 this page draws on

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Summary

They developed long COVID in late 2022; their other symptoms mostly resolved within about six months, though gut inflammation, histamine intolerance and burning legs persisted. A COVID reinfection in June 2023 set them back six weeks. A 2025 trip to their childhood home brought 95% relief, but symptoms returned worse when they flew back. They later credited mind-body work, and said the last symptoms faded after their wife found work.

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Asking aboutTulip 51142’s story

What they tried

Their words about each treatment
  • Clonazepam · WorseEvery time I make a reduction, I get a return of LC symptoms around 8-9 days later, just after the peak of the Clonazepam withdrawals. In context ↗
  • pushing through crashes · Helped a lotI constantly pushed and crashed but I kept doing it and gradually the fear of crashing diminished that I pushed more and more. In context ↗
  • NSAIDs · WorseThey threw NSAIDs at me which only messed up my stomach even more. In context ↗
  • Magnesium Glycinate · Not saidI take Magnesium Glycinate, MultiVit, Glutamine, D3, Fish Oil. In context ↗
  • 'safe' bland diet / eating clean · HelpedI've been eating a 'safe' diet consisting of the same bland foods everyday with an occasional treat for many months/years. In context ↗
  • fasting 48+ hours · HelpedFasting helps and eating clean helps too but it eventually creeps back and I can only fast so often as I don't get relief until I fast 48+ hours. In context ↗
  • gel packs strapped to forehead · HelpedI ended up buying 6 small gelpacks and rotate them every 30 minutes, using a rubberband to strap them to my forefead. Looks stupid, helps a lot. In context ↗
  • oregano oil · WorseI'm in the same predicament right now from a course of oregano oil. Seems like they both wipe out much of the good along with the bad bacteria and I'm experiencing the same reactions to food and am back to my safe 3 meals everyday. In context ↗
  • Famotidine · HelpedI started taking Famotidine and Omeprazole about 2 months before the trip with improvement in the gastritis but no effect otherwise. In context ↗
  • Gut Health powder supplement · HelpedThis was mainly for gastritis and it helped some but didn't really much of anything for my gut, unfortunately. In context ↗
  • Mebeverine · Not saidI was diagnosed with IBS and given Mebeverine and Nortriptyline and recommended to do a colonoscopy. In context ↗
  • Nortriptyline · Helped a lot50mg of Nortriptyline is helping greatly with both and I'm not sure I'd still be here otherwise. In context ↗
  • Ciprofloxacin · WorseI've since gone on to develop Chronic Pelvis Pain syndrome after a misdiagnosis anxiety from the Colonoscopy/CT scan and/or from Ciprofloxin I took. In context ↗
  • MindBody somatic safety signaling · Helped a lotI believe it to be a combination of anxiety (MindBody somatic safety signaling) ... the MindBody connection is huge like so many recovery stories state
  • much colder climate · Helpedthe much colder climate providing some small but noticable improvement In context ↗

Approaches: Brain retraining · Exercise and activity · Tricyclic antidepressants

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2022Long COVID began, with severe right-rib pain that made him seek medical attentionI got Long Covid a year ago In context ↗
May 2023daily symptoms let up; left with flare-ups from stress, exertion, sun and foodIn May my daily LC symptoms had let up and I was just left with flare-ups from stress or exertion or sun exposure In context ↗
June 2023COVID reinfection brought back LC symptoms; six weeks to previous baselineIn June I got infected with Covid and LC. ... It took about 6 weeks to return to my previous baseline In context ↗
2024no symptoms or food intolerances; could exercise and work between benzo dose reductionsthere was a period in 2024 where I had no more symptoms or even food intolerances, could exercise and work in between dose reductions In context ↗
early 2025daily gut inflammation, gastritis, histamine intolerance, fatigue and burning legsI had daily inflammation in my intestines, minor gastritis, general GI problems, histamine intolerance, fatigue. In context ↗
March - April 2025trip to childhood home; could eat anything and symptoms nearly gone within 3 daysSymptoms 95% improved within 3 days while traveling to childhood home. In context ↗
May 2025symptoms returned worse than before after flying home; gut and legs burning intenselyWithin a few days of getting back here my symptoms have all returned to even worse levels than previously In context ↗
December 2025small improvement from mind-body work and colder climate; chronic pelvic pain developed; nortriptyline helpingI believe it to be a combination of anxiety (MindBody somatic safety signaling) and the much colder climate providing some small but noticable improvement. In context ↗Sarno / TMS / somatic tracking / JournalSpeak
August 2026last symptoms faded once his wife got a job, giving peace, solitude and less financial strainWhen my wife got a job and I finally had some peace and solitude along with the financial burden partially lifted is when the last of my symptoms faded. In context ↗

Adverse events

  • Clonazepam (Klonopin)“Every time I make a reduction, I get a return of LC symptoms around 8-9 days later, just after the peak of the Clonazepam withdrawals.” In context ↗ Withdrawal problems
  • Clonazepam (Klonopin)“I've been making 0.025mg cuts, which I barely even feel, but it is still is giving me flare-ups ... The worst symptom is body wide inflammation, almost like autoimmune disorder.” In context ↗ Autoimmune or inflammatory flare
  • Oregano oil“I'm in the same predicament right now from a course of oregano oil. Seems like they both wipe out much of the good along with the bad bacteria and I'm experiencing the same reactions to food” In context ↗ Made symptoms worse
  • NSAIDs (unspecified)“They threw NSAIDs at me which only messed up my stomach even more.” In context ↗ Gut side effects
  • Ciprofloxacin (Cipro)“I've since gone on to develop Chronic Pelvis Pain syndrome after a misdiagnosis anxiety from the Colonoscopy/CT scan and/or from Ciprofloxin I took.” In context ↗ Other

Symptoms mentioned

Their words about their symptoms
  • Gut problemsI had daily inflammation in my intestines, minor gastritis, general GI problems In context ↗
  • Mast cell (MCAS) & allergiesI'm experiencing the same reactions to food and am back to my safe 3 meals everyday. In context ↗
  • Neuropathy & tinglingI've also been experiencing burning in my legs since mid '21 that hasn't let up a single day In context ↗
  • Pain & fibromyalgiaI've since gone on to develop Chronic Pelvis Pain syndrome In context ↗
  • Sleep problemsmy sleep quality drops substantially In context ↗
  • Post-exertional malaiseflare-ups from stress or exertion or sun exposure In context ↗
  • Temperature regulationI get a fever feeling constantly but when I take my temperature its always normal In context ↗
  • Anxiety & low moodI believe it to be a combination of anxiety (MindBody somatic safety signaling) In context ↗

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