Long COVID with gut and burning leg symptoms, now near normal after mind-body work
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 6 months
- Last post
- Aug 2026
In their words
- Condition: Long COVID
I got Long Covid a year ago and had gotten down to 0.6mg.
In context ↗ - At worst: Mild
When I left I had daily inflammation in my intestines, minor gastritis, general GI problems, histamine intolerance, fatigue.
In context ↗ - Now: Near normal
I recovered from Long COVID symptoms twice but never posted here because I was, and am now again, tapering from benzos so I still wasn't 100%.
In context ↗ - Began after: COVID
I got Long Covid a year ago
In context ↗
Read from 15 of their posts and comments; links to the 11 this page draws on
Summary
They developed long COVID in late 2022; their other symptoms mostly resolved within about six months, though gut inflammation, histamine intolerance and burning legs persisted. A COVID reinfection in June 2023 set them back six weeks. A 2025 trip to their childhood home brought 95% relief, but symptoms returned worse when they flew back. They later credited mind-body work, and said the last symptoms faded after their wife found work.
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What they tried
What they credit
Also tried
Their words about each treatment
- Clonazepam · Worse
Every time I make a reduction, I get a return of LC symptoms around 8-9 days later, just after the peak of the Clonazepam withdrawals.
In context ↗ - pushing through crashes · Helped a lot
I constantly pushed and crashed but I kept doing it and gradually the fear of crashing diminished that I pushed more and more.
In context ↗ - NSAIDs · Worse
They threw NSAIDs at me which only messed up my stomach even more.
In context ↗ - Magnesium Glycinate · Not said
I take Magnesium Glycinate, MultiVit, Glutamine, D3, Fish Oil.
In context ↗ - 'safe' bland diet / eating clean · Helped
I've been eating a 'safe' diet consisting of the same bland foods everyday with an occasional treat for many months/years.
In context ↗ - fasting 48+ hours · Helped
Fasting helps and eating clean helps too but it eventually creeps back and I can only fast so often as I don't get relief until I fast 48+ hours.
In context ↗ - gel packs strapped to forehead · Helped
I ended up buying 6 small gelpacks and rotate them every 30 minutes, using a rubberband to strap them to my forefead. Looks stupid, helps a lot.
In context ↗ - oregano oil · Worse
I'm in the same predicament right now from a course of oregano oil. Seems like they both wipe out much of the good along with the bad bacteria and I'm experiencing the same reactions to food and am back to my safe 3 meals everyday.
In context ↗ - Famotidine · Helped
I started taking Famotidine and Omeprazole about 2 months before the trip with improvement in the gastritis but no effect otherwise.
In context ↗ - Gut Health powder supplement · Helped
This was mainly for gastritis and it helped some but didn't really much of anything for my gut, unfortunately.
In context ↗ - Mebeverine · Not said
I was diagnosed with IBS and given Mebeverine and Nortriptyline and recommended to do a colonoscopy.
In context ↗ - Nortriptyline · Helped a lot
50mg of Nortriptyline is helping greatly with both and I'm not sure I'd still be here otherwise.
In context ↗ - Ciprofloxacin · Worse
I've since gone on to develop Chronic Pelvis Pain syndrome after a misdiagnosis anxiety from the Colonoscopy/CT scan and/or from Ciprofloxin I took.
In context ↗ - MindBody somatic safety signaling · Helped a lot
I believe it to be a combination of anxiety (MindBody somatic safety signaling) ... the MindBody connection is huge like so many recovery stories state
- much colder climate · Helped
the much colder climate providing some small but noticable improvement
In context ↗
Approaches: Brain retraining · Exercise and activity · Tricyclic antidepressants
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2022 | Long COVID began, with severe right-rib pain that made him seek medical attentionI got Long Covid a year agoIn context ↗ | |
| May 2023 | daily symptoms let up; left with flare-ups from stress, exertion, sun and foodIn May my daily LC symptoms had let up and I was just left with flare-ups from stress or exertion or sun exposureIn context ↗ | |
| June 2023 | COVID reinfection brought back LC symptoms; six weeks to previous baselineIn June I got infected with Covid and LC. ... It took about 6 weeks to return to my previous baselineIn context ↗ | |
| 2024 | no symptoms or food intolerances; could exercise and work between benzo dose reductionsthere was a period in 2024 where I had no more symptoms or even food intolerances, could exercise and work in between dose reductionsIn context ↗ | |
| early 2025 | daily gut inflammation, gastritis, histamine intolerance, fatigue and burning legsI had daily inflammation in my intestines, minor gastritis, general GI problems, histamine intolerance, fatigue.In context ↗ | |
| March - April 2025 | trip to childhood home; could eat anything and symptoms nearly gone within 3 daysSymptoms 95% improved within 3 days while traveling to childhood home.In context ↗ | |
| May 2025 | symptoms returned worse than before after flying home; gut and legs burning intenselyWithin a few days of getting back here my symptoms have all returned to even worse levels than previouslyIn context ↗ | |
| December 2025 | small improvement from mind-body work and colder climate; chronic pelvic pain developed; nortriptyline helpingI believe it to be a combination of anxiety (MindBody somatic safety signaling) and the much colder climate providing some small but noticable improvement.In context ↗ | Sarno / TMS / somatic tracking / JournalSpeak |
| August 2026 | last symptoms faded once his wife got a job, giving peace, solitude and less financial strainWhen my wife got a job and I finally had some peace and solitude along with the financial burden partially lifted is when the last of my symptoms faded.In context ↗ |
Adverse events
- Clonazepam (Klonopin)“Every time I make a reduction, I get a return of LC symptoms around 8-9 days later, just after the peak of the Clonazepam withdrawals.” In context ↗ Withdrawal problems
- Clonazepam (Klonopin)“I've been making 0.025mg cuts, which I barely even feel, but it is still is giving me flare-ups ... The worst symptom is body wide inflammation, almost like autoimmune disorder.” In context ↗ Autoimmune or inflammatory flare
- Oregano oil“I'm in the same predicament right now from a course of oregano oil. Seems like they both wipe out much of the good along with the bad bacteria and I'm experiencing the same reactions to food” In context ↗ Made symptoms worse
- NSAIDs (unspecified)“They threw NSAIDs at me which only messed up my stomach even more.” In context ↗ Gut side effects
- Ciprofloxacin (Cipro)“I've since gone on to develop Chronic Pelvis Pain syndrome after a misdiagnosis anxiety from the Colonoscopy/CT scan and/or from Ciprofloxin I took.” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Gut problems
I had daily inflammation in my intestines, minor gastritis, general GI problems
In context ↗ - Mast cell (MCAS) & allergies
I'm experiencing the same reactions to food and am back to my safe 3 meals everyday.
In context ↗ - Neuropathy & tingling
I've also been experiencing burning in my legs since mid '21 that hasn't let up a single day
In context ↗ - Pain & fibromyalgia
I've since gone on to develop Chronic Pelvis Pain syndrome
In context ↗ - Sleep problems
my sleep quality drops substantially
In context ↗ - Post-exertional malaise
flare-ups from stress or exertion or sun exposure
In context ↗ - Temperature regulation
I get a fever feeling constantly but when I take my temperature its always normal
In context ↗ - Anxiety & low mood
I believe it to be a combination of anxiety (MindBody somatic safety signaling)
In context ↗
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