ME/CFS
Moderate → no benefitIll for 1 year
Housebound for weeks with suspected ME/CFS, no diagnosis and no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 1 year
- Last post
- Jun 2025
In their words
- Condition: ME/CFS
I think I might have CFS
In context ↗ - At worst: Moderate
since the middle of may it's been so bad I've been pretty much housebound for weeks
In context ↗ - Now: No benefit
since the middle of may it's been so bad I've been pretty much housebound for weeks
In context ↗ - Began after: nothing they could name
i don't know what could have triggered it.
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 31-year-old who had been fit and active described a few years of overtiredness, then from mid-2024 episodes of exhaustion lasting days. From mid-May 2025 they were housebound for weeks with constant physical and mental exhaustion, unrefreshing sleep, aching, headache and sore throat, and a doctor's appointment left them feeling they had run a marathon. Blood tests were normal; they suspected ME/CFS but had no diagnosis or identified trigger.
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What they tried
Also tried
Their words about each treatment
- long walks and yoga · Not said
I've always liked going on long walks and yoga, which is meant to be good for energy boosts so I tried keeping this up in the past, but lately it seems even the slightest thing tires me out.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2024 | extreme episodes of exhaustion lasting days, then back to normalThe last year or so though I've had these extreme "episodes" of exhaustion, sometimes lasting daysIn context ↗ | Mild |
| mid-May 2025 | became housebound for weekssince the middle of may it's been so bad I've been pretty much housebound for weeksIn context ↗ | Moderate |
| 2025-06-24 | still housebound with constant exhaustionI've felt constantly exhausted, not just physically but mentally, like I can't focus and just feel groggyIn context ↗ | Moderate |
Symptoms mentioned
Brain fogFlu-like symptomsHeadaches & migrainePain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
Last week I went out for my doctor's appointment and the next morning felt like I'd ran a marathon.
In context ↗ - Brain fog
make me feel like i was in a fog or stuck under a weighted blanket
In context ↗ - Sleep problems
It's like no matter how much I sleep, I don't feel any different for it.
In context ↗ - Pain & fibromyalgia
Felt achy all over
In context ↗ - Headaches & migraine
had the worst headache and sore throat
In context ↗ - Flu-like symptoms
like having a hangover or the flu
In context ↗