ME/CFS with weekly crashes and brain fog, somewhat better on low-dose naltrexone and CBD
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2023
In their words
- Condition: ME/CFS
I’ve stopped crashing or having PEM that lasts any longer than a day at most.
In context ↗ - At worst: Moderate
I used to crash almost weekly before starting LDN but my general fatigue has decreased by a ton and I’m able to do much more than before but still my abilities are so limited due to the constant fatigue..
In context ↗ - Now: Somewhat better
I’m able to do much more than before but still my abilities are so limited due to the constant fatigue..
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
They had ME/CFS with weekly crashes, brain fog, breathlessness and muscle weakness. Low-dose naltrexone reduced fatigue, stopped crashes lasting more than a day and let them do much more, though constant fatigue and neurological symptoms kept them limited. The benefit faded on a stable dose but returned with each increase, and they reached their maximum dose after six months. CBD calmed their nervous system but was too expensive to sustain.
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What they tried
What they credit
Also tried
Their words about each treatment
- CBD · Helped
CBD calms down my nervous system but it’s very expensive so not sure if it’s sustainable for long term use but i notice a big difference when i take it consistently for a few weeks
In context ↗ - vape weed · Helped
i do vape weed which brings me pleasure and pain relief
In context ↗ - dietary choices · Helped
i’m one of those people majorly affected by dietary choices so I can’t eat unhealthy or drink alcohol
In context ↗ - LDN · Helped a lot
It works wonders for me for a while every time I up my dosage but when i’m on the same dose every day the positive effects start to fade ... I’m now on my max dosage after starting LDN 6 months ago
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| before LDN | Weekly crashes and very limited abilities before LDNI used to crash almost weekly before starting LDNIn context ↗ | Moderate | |
| 2023-09-03 | Less fatigue and fewer crashes after LDN, but still limitedmy general fatigue has decreased by a ton and I’m able to do much more than beforeIn context ↗ | Mild | Low-dose naltrexone |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I’ve stopped crashing or having PEM that lasts any longer than a day at most.
In context ↗ - Brain fog
the obvious brain fog
In context ↗ - Breathlessness
brain fog and breathlessness
In context ↗ - Heart symptoms & palpitations
my HR spike to the 200’s
In context ↗ - Muscle weakness
tremors and muscle weakness
In context ↗
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