Long COVID
Moderate → no benefitIll for 4 yearsNeeds ongoing treatment
Long COVID with POTS and fatigue, still unable to walk ten minutes without heart racing
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 4 years
- Last post
- Aug 2025
In their words
- Condition: Long COVID
This May i will have my 4th Longcovid anniversary.
In context ↗ - At worst: Moderate
I can't walk 10min, can't do anything strenuous
In context ↗ - Now: No benefit
I don't know how people recover or improve but for me atleast seems like never ending.
In context ↗ - Began after: COVID
Covid happened to me when vaccine wasn't available for us.
Read from 11 of their posts and comments; links to the 6 this page draws on
Summary
A previously athletic man caught COVID in 2021 at age 26; a month later his heart rate spiked into the 160s, POTS started around then, and dizziness, fatigue, tinnitus and breathlessness persisted or worsened over four years. Beta blockers (bisoprolol) helped keep his heart rate somewhat in check while masking some symptoms; vitamins, pacing and nicotine patches failed or made him worse, and ivabradine controlled his heart rate but caused other symptoms, so he stopped it. He remained unable to walk ten minutes without his heart racing.
Ask Miruvor AI
What they tried
Also tried
ivabradine· Helpedbisoprolol· Helpedcompression stockings and salt overloading· No changecompression stockings and salt overloading· No changenumerous vitamin protocols· No changeBreathing and mindfulness· No changethiamine (B1) high doses· No changeslow pacing· Worsenicotine patch regime· WorseHBOT· Not saidCOVID vaccination as treatment· Not said
Their words about each treatment
- compression stockings and salt overloading · No change
compression stockings and salt overloading doesn't work for me. That's what i tried first when i got diagnosis
In context ↗ - numerous vitamin protocols · No change
numerous vitamin protocol ( didn't work)
In context ↗ - slow pacing · Worse
slow pacing initial suggestions from doctors ( didn't work, made me worse)
In context ↗ - nicotine patch regime · Worse
nicotine patch regime (made me worse)
In context ↗ - Breathing and mindfulness · No change
Breathing and mindfulness ( neutral experience )
In context ↗ - ivabradine · Helped
ivabradine ( Controlled HR, but i had to stop after six to seven months because it gave me other symptoms)
In context ↗ - bisoprolol · Helped
taking beta blockers ( bisoprolol) from 3 years. Helps with my HR a little but doesn't do anything for my other symptoms
In context ↗ - HBOT · Not said
I have tried all possible treatment going into all rabbit holes. Vitamin, HBOT, Whatnot.
In context ↗ - thiamine (B1) high doses · No change
i have taken high doses and still end up with it
In context ↗ - COVID vaccination as treatment · Not said
dizziness ( started after the first dose of vaccine and has slowly increased, and some days it's so bad that I can't stand or walk)
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021 | COVID-19, mild feverCovid happened to me when vaccine wasn't available for us. It was like any mild fever and i thought i will be out in no time.In context ↗ | Mild |
| 2021, one month after infection | Long COVID began: heart rate in the 160s, then a downward spiral1 month after covid symptoms came like hell. 1st one was high HR in 160s out of no where one night. And from there on it's all downward spiral.In context ↗ | Moderate |
| 2025-08-22 | still high heart rate on any activity, dizziness, fatigue, tinnitus, breathlessnessHigh hr on standing or basically doing anything biggest issue so farIn context ↗ | Moderate |
Adverse events
- Pacing and the energy envelope“slow pacing, initial suggestions from doctors ( didn't work, made me worse)” In context ↗ Made symptoms worse
- Nicotine patches“nicotine patch regime (made me worse)” In context ↗ Made symptoms worse
- Ivabradine“i had to stop after six to seven months because it gave me other symptoms” In context ↗ Side effects
- COVID vaccination as treatment“dizziness ( started after the first dose of vaccine and has slowly increased, and some days it's so bad that I can't stand or walk)” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
Without beta blockers, it goes to 145+ and stays.
In context ↗ - Tinnitus
tinitus, buzzing aound inside head
In context ↗ - Breathlessness
SOB( maybe secondary to POTS)
In context ↗ - Anxiety & low mood
I am just loosing all hope. There is no point living like this.
In context ↗ - Pain & fibromyalgia
sharp pain near left center of chest 2nd and 4th rib( went away after like 1.5 years)
In context ↗