Homebound with long COVID, now somewhat better after B-12 and 5-MTHF
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
So I’ve had LC for 6 years and am homebound and “Almost unemployed”.
In context ↗ - At worst: Moderate
For past 1.5 years, homebound. Just this week about to get out a bit.
In context ↗ - Now: Somewhat better
I’m feeling better than ever (actually I still feel the Long Covid crap, but it’s not as bad)
In context ↗ - Began after: COVID
So I’ve had LC for 6 years
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
Has had long COVID for six years and was homebound for the past 1.5 years and almost unemployed. Tramadol knocked out their worst brain symptoms for three years, giving about five hours of normalcy a day, until a doctor stopped prescribing it and tapering caused total insomnia. Benadryl eased the insomnia and 5-MTHF with B-12 gave the brain some bounce and more energy, leaving them feeling better than before but still not well.
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What they tried
What they credit
Also tried
Their words about each treatment
- Tramadol · Helped
it totally knocked out my worst brain symptoms for three years ... it was like so nice to have 5 hours a day of normalcy
In context ↗ - ketamine (microdose) · Worse
First night, panic attack, horror dreams, and my chest beat at autobahn levels. Never again.
In context ↗ - benadryl · Helped
So I have been using benadry to great effect and insomnia gone.
In context ↗ - 5-MTHF PLUS B-12 · Helped
5-MTHF PLUS B-12 has given my brain some bounce. More energy.
In context ↗
Approaches: Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.9 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | came down with long COVIDSo I’ve had LC for 6 yearsIn context ↗ | Not stated |
| 2023 | Tramadol gave about 5 hours a day of normalcyit totally knocked out my worst brain symptoms for three years ... it was like so nice to have 5 hours a day of normalcyIn context ↗ | Moderate |
| 2025 | homebound and almost unemployed for the past 1.5 yearsFor past 1.5 years, homebound.In context ↗ | Moderate |
| 2026-09 | titrating off tramadol caused total insomniaThis titration sucks HARD and gave me insomnia ... It flipped my sleep schedule. Total insomnia. | Moderate |
| 2026-09-20 | 5-MTHF plus B-12 gave more energy and less brain fog5-MTHF PLUS B-12 has given my brain some bounce. More energy.In context ↗ | Moderate |
| 2026-09-20 | feeling better than ever, about to get out a bitToday my test read 1,365 and I’m feeling better than ever (actually I still feel the Long Covid crap, but it’s not as bad).In context ↗ | Moderate |
Adverse events
- Ketamine“First night, panic attack, horror dreams, and my chest beat at autobahn levels. Never again.” In context ↗ Mood or psychiatric effects
- Ketamine“First night, panic attack, horror dreams, and my chest beat at autobahn levels.” In context ↗ Heart rhythm problems
- Tramadol“the withdrawal to 200 mg to 100 mg was horrid. It flipped my sleep schedule. Total insomnia.” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Brain fog
it totally knocked out my worst brain symptoms for three years
In context ↗ - Pain & fibromyalgia
I’ve also been on Tramadol for LC pain
In context ↗ - Sleep problems
It flipped my sleep schedule. Total insomnia. ... insomnia gone
In context ↗
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