Too ill to work with long COVID, now somewhat better with rest and pacing
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4.5 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I got long covid in 2022
In context ↗ - At worst: Moderate
I cant even work at all. Im not even 40.
In context ↗ - Now: Somewhat better
Progress is slow and I still cant work, but i can manage my daily tasks most days and get out the house for important events or something I want to do
In context ↗ - Began after: COVID
the covid infection that gave me long covid
Read from 25 of their posts and comments; links to the 17 this page draws on
Summary
Crane 66587 developed long COVID in 2022 and became too ill to work, with POTS, tachycardia, brain fog, head pressure and flu-like crashes after overdoing it. They regressed around year one, then focused on rest and pacing; things changed at the three-year mark. Beta blockers, electrolytes, compression stockings, famotidine and antihistamines helped symptoms, while supplements made them worse and magnesium on its own caused bad reactions. By late 2026 they still could not work but managed daily tasks most days.
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What they tried
What they credit
Also tried
Their words about each treatment
- monupilivar · Helped
I take monupilivar when I get covid and its worked very well.
In context ↗ - beta blockers · Helped
Beta blockers stopped these episode for me completely.
In context ↗ - magnesium · Worse
If I take any magnesium I get restless legs all night and feel terrible.
In context ↗ - electrolytes · Helped
I do tolerate the magnesium in my electrolytes powder and I drink 2 scoops a day.
In context ↗ - salt · Helped
Beta blockers, electrolytes, salt, compression stockings, pepcid & allegra
In context ↗ - garmen · Helped
It was the only thing that seemed to help me get a little better.
In context ↗ - supplements · Worse
Most supplements make me feel worse.
In context ↗ - eating less carbs and sugar · Helped
Eating less carbs and sugar helps
In context ↗ - cbd · Not said
I take cbd for brain fog.
In context ↗ - azelastine · Not said
And azelastine for my nose spray.
In context ↗ - finding my baseline and sticking to it / resting when I need to · Helped
Finding my baseline and sticking to it. Resting when I need to.
In context ↗ - time · Helped
rest and your needs which has been the only thing to help me, other than time
In context ↗ - B*nzos · Helped
B*nzos help me at a small dose
In context ↗ - olfactory reset · Helped
Thats what I did, and it was torture at first, but it did go away eventually
In context ↗
Approaches: Antivirals · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | COVID infection followed by long COVIDI got long covid in 2022In context ↗ | Mild | |
| about year one | regressed around year one; unable to work at allI kind of regressed about year one, and really focused on rest. ... I cant even work at all. | Moderate | |
| 3 year mark | things changed after focusing on rest3 year mark..things changed.In context ↗ | Moderate | Pacing and the energy envelope |
| 2026-10-23 | managing daily tasks most days, some normal-ish days, still not workingIt took years, but I can at least have some days where im normal-ishIn context ↗ | Moderate |
Adverse events
- Magnesium“I have terrible reaction to magnesium.” In context ↗ Side effects
- Magnesium“If I take any magnesium I get restless legs all night and feel terrible. Like sooo anxious I wanna rip my skin off” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
My symptoms get worse if I push myself too much.
In context ↗ - Brain fog
I take cbd for brain fog. ... 4 years in and it still happens.
- POTS & dysautonomia
This happens to me. Its the pots.
In context ↗ - Sleep problems
I had this my first year. ... It resolved after a year or so.
In context ↗ - Heart symptoms & palpitations
I was getting similar stuff but tachycardia. ... Beta blockers stopped these episode for me completely.
In context ↗ - Flu-like symptoms
Feels like a flu with some nuerological stuff
In context ↗ - Headaches & migraine
the pressure got so much better with time. Now I only get it with a migraine or illness.
In context ↗ - Loss of smell or taste
I smelled a dirty bandaid for like 3 months after the covid infection that gave me long covid.
In context ↗ - Vision problems
I feel like I cant see.
In context ↗ - Anxiety & low mood
for a while, it was a very dark time
In context ↗ - Pain & fibromyalgia
without being in pain and miserable the whole time
In context ↗
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