Long COVID with brain fog, nerve pain and palpitations, somewhat better over time
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 18 months
- Last post
- Nov 2024
In their words
- Condition: Long COVID
I was diagnosed with presumptive long covid.
In context ↗ - At worst: Mild
with my worst symptoms being severe lightheadedness, brain fog, derealization and nerve pain that radiates throughout my chest and limbs
In context ↗ - Now: Somewhat better
my symptoms were at their absolute worst in the beginning ... but now it's "just" lightheadedness, palpitations and adrenaline dumps
In context ↗ - Began after: COVID
I caught Covid in August of 2023 and for the ensuing 4 months I experienced lightheadedness
Read from 9 of their posts and comments; links to the 7 this page draws on
Summary
They developed long COVID after a COVID infection in August 2023: lightheadedness, panic attacks, nerve pain, brain fog and palpitations. A January 2024 reinfection brought the symptoms back after they had begun to ease. They improved overall with time, though they were in a bad phase in November 2024; supplements corrected low vitamin B and D, but lightheadedness, palpitations and adrenaline dumps remained. They considered Lexapro and nicotine patches.
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What they tried
What they credit
Also tried
Their words about each treatment
- cold showers · Helped a lot
I found cold showers helped a lot (good for vagal nervous system)
In context ↗ - NSAIDs · Helped
NSAIDs provide a lot of relief for me, but don't seem sustainable in the longterm
In context ↗ - supplements · No change
no combination of supplements or dietary changes seems to fix things
In context ↗ - vitamin D supplements · Not said
B and D levels were initially low, but I've corrected that with supplements.
In context ↗ - time · Helped
overall it's gotten better with time
In context ↗
Approaches: Alternative therapies
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| August 2023 | COVID infection followed by long COVID symptomsI caught Covid in August of 2023 and for the ensuing 4 months I experienced lightheadedness, anxiety/panic like symptomsIn context ↗ | Mild |
| late 2023 | worst symptoms, almost blacking out while walkingI had several experiences in the early days where I felt like I almost blacked out while walking aroundIn context ↗ | Mild |
| January 2024 | symptoms began to subside on their ownEventually I began to recoverIn context ↗ | Mild |
| early January 2024 | crashed after COVID reinfectionwas reinfected in early January, which caused many of these symptoms to come rushing backIn context ↗ | Mild |
| November 2024 | better overall but in a bad phaseoverall it's gotten better with time ... I'm currently in a bad phase and lying down to try and fight off an episodeIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
my worst symptoms being severe lightheadedness, brain fog, derealization and nerve pain
In context ↗ - Neuropathy & tingling
random nerve pain throughout my body, oftentimes in my chest or limbs
In context ↗ - Anxiety & low mood
I'm just in a constant state of borderline panic attack
In context ↗ - Heart symptoms & palpitations
some pretty startling heart palpitations
In context ↗
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