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Long COVID Moderate → relapsedIll 4 months before improving or writing

Long COVID brain fog, anxiety and depression, unable to work; ketamine helped then relapse

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
4 months
Last post
Nov 2022
In their words
  • Condition: Long COVIDSince I got LH back in May In context ↗
  • At worst: ModerateI basically can’t function much between 9-4ish each day In context ↗
  • Now: Relapsedthe first one killed the fight of flight entirely for a bit over two weeks for me and I was out and about living a normal life for a bit In context ↗
  • Began after: COVIDpost-COVID most significantly manifested as significantly worse depression
Read from 8 of their posts and comments; links to the 5 this page draws on

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Summary

Ridge 39493 developed long COVID in May 2022 with severe depression, anxiety, dissociative episodes, brain fog and dysautonomia, and could not work. A first IV ketamine infusion in August ended the fight-or-flight response and gave about two weeks of near-normal life; a second helped half as much. A booster may have worsened anxiety, and by November mornings were still debilitating, easing by evening. Denied disability and Medicaid; had to cancel an infusion.

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What they tried

Their words about each treatment
  • antidepressants / psychiatric meds · Much worseantidepressants have basically all made it much worse In context ↗
  • propranolol · Helpedpropranolol prevented them from turning to panic attacks but did little for the anxiety/general fight or flight In context ↗
  • IV Ketamine infusion · Helped a lotthe first one killed the fight of flight entirely for a bit over two weeks for me and I was out and about living a normal life for a bit In context ↗
  • bivalent booster · WorseI got mine and had a worsening of symptoms (anxiety especially) the day after that I’m still dealing with, but I’m not 200% sure it was the booster In context ↗
  • SGB (Stellate Ganglion Block) injection · Not saidJust had the SGB yesterday. Super easy procedure ... Been tricky for me to say if I’ve had any improvement In context ↗

Approaches: Other drugs and medicines

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
May 2022Long COVID onsetSince I got LH back in May In context ↗Moderate
2022-08-22First IV ketamine infusion; fight-or-flight gone for over two weeksthe first one killed the fight of flight entirely for a bit over two weeks for me and I was out and about living a normal life for a bit In context ↗Near normalKetamine
2022-09-11Bivalent COVID booster worsened anxietyI got mine and had a worsening of symptoms (anxiety especially) the day after that I’m still dealing with In context ↗Mild
2022-09-17Second ketamine infusion, about half the effect of the firstSecond infusion I got a couple days ago and it hasn’t worked quite as well- I’d say more like a halfway of what the first one did, where it’s more under control but it still definitely happens In context ↗MildKetamine
2022-09-27Stellate ganglion block injection, anxiety manageableBeen tricky for me to say if I’ve had any improvement since I had a ketamine infusion a week and a half ago and I think that’s still helping ... have had some anxiety today but it’s been manageable In context ↗MildStellate ganglion block
2022-11-05Still symptomatic with a diurnal pattern; no improvement from circadian optionsmy symptoms (severe depression, anxiety, fatigue, etc.) are debilitatingly bad when I wake up ... I basically can’t function much between 9-4ish each day In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodpost-COVID most significantly manifested as significantly worse depression (with intense dissociative episodes) and frequent panic/anxiety attacks In context ↗
  • Brain fogI would still have lots of anxiety, brain fog, memory issues, agoraphobia In context ↗
  • POTS & dysautonomiaGot diagnosed with Dysautonomia and am going to a cardiologist later this week to talk about POTS. In context ↗

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