Severe fatigue and brain fog, sleeping up to 20 hours a day, no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Mar 2015
In their words
- At worst: Severe
sleeping 16-20 hours a day. Cannot stay awake. Brain fog.
In context ↗ - Now: No benefit
I am not getting any better
In context ↗ - Began after: injury or surgery
it was right after my root canal
- Says they never had: Anxiety & low mood
Asked if I'm depressed, I'm not
Summary
A 43-year-old woman developed an elevated temperature (not technically a fever), muscle and joint pain, severe fatigue and brain fog in late January 2015, right after a root canal, and was sleeping 16-20 hours a day. Seven weeks on she had added nausea, diarrhoea and constipation and chest and abdominal pain, and was referred to an infectious disease specialist with no diagnosis settled. She then collapsed and was treated for dehydration in the ER. No improvement was reported.
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What they tried
Also tried
Their words about each treatment
- cpap · Helped a lot
Last year I was diagnosed with severe sleep apnea and a cpap helped enormously.
In context ↗ - Amoxicillin · No change
The dentist prescribed Amoxicillin. The temp did not go away
In context ↗ - Clindamycin · No change
After the full course of antibiotics I did not get better.
In context ↗ - Prednisone · No change
she started me on Prednisone and I did not get better after a week so she told me to stop
In context ↗ - diet and exercise · Helped
I brought that down in the last year with diet and exercise
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| late January 2015 | fever, muscle and joint pain, severe fatigue and brain fog starting after a root canalIn late January I had a root canal and that night developed an elevated temp 100 FIn context ↗ | Moderate |
| 2015-03-18 | sleeping 16-20 hours a day, added nausea, gut and chest painsleeping 16-20 hours a day. Cannot stay awake.In context ↗ | Severe |
| 2015-03-18 | collapsed and taken to ER, treated for dehydrationCollapsed earlier tonight and ended up in ER.In context ↗ | Severe |
| 2015-03-20 | still ill, waiting on C. diff test resultsI was on the road to losing weight, exercising and now this hits.In context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
developed muscle and joint pain
In context ↗ - Brain fog
severe fatigue, mental fog/confused at times
In context ↗ - Sleep problems
sleeping 16-20 hours a day. Cannot stay awake.
In context ↗ - Flu-like symptoms
Feel like I have the flu without the cold symptoms.
In context ↗ - Temperature regulation
temp that fluctuates from normal to 99.9 to 100.6
In context ↗ - Gut problems
all day nausea and alternating diarrhea and constipation
In context ↗ - Heart symptoms & palpitations
pain in the center of my chest when I take deep breaths
In context ↗ - POTS & dysautonomia
Collapsed earlier tonight and ended up in ER.
In context ↗