Moderate ME/CFS with constant crashes, now somewhat better after Saxenda
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- May 2026
In their words
- Condition: ME/CFS
I started Saxenda (available in NZ) two weeks ago and I’m blown away by the changes I’ve noticed in that short time regarding ME symptoms.
In context ↗ - At worst: Moderate
I’d describe myself as moderate. I recently had to quit my part time job because I couldn’t manage both that and looking after a toddler.
In context ↗ - Now: Somewhat better
My boy is now 3 and while I still struggle, not working has helped.
In context ↗ - Began after: nothing they could name
I got sick after having my first and only child ... just kept getting sicker and sicker
Summary
She became ill after her son's birth and worsened for 18 months, ending up moderate and quitting her part-time job amid constant crashes. Two weeks into Saxenda in June 2025 her joint pain had almost gone, crashes stopped and energy improved; by November she had added B12 injections, with brain fog and vision symptoms persisting. By May 2026 she still struggled, though not working helped.
Ask Miruvor AI
What they tried
Their words about each treatment
- not working · Helped
My boy is now 3 and while I still struggle, not working has helped.
In context ↗ - Saxenda · Helped a lot
I started Saxenda (available in NZ) two weeks ago and I’m blown away by the changes I’ve noticed in that short time regarding ME symptoms.
In context ↗ - b12 injections · Helped
I’m also now doing b12 injections and while I can’t say for sure, I think the two together is helping
In context ↗
Approaches: GLP-1 drugs · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.1 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| after her son's birth (about 2023) | fell ill after the birth of her sonI got sick after having my first and only childIn context ↗ | Not stated | |
| June 2025 | quit her part-time job, stuck in a constant crash cycleI recently had to quit my part time job because I couldn't manage both that and looking after a toddler ... I was constantly stuck in a crash cycleIn context ↗ | Moderate | |
| June 2025 (two weeks on Saxenda) | joint pain nearly gone, no crashes, more energymy joint pain is almost completely gone, I haven't had a single crash in two weeks, and I have noticeably more energyIn context ↗ | Moderate | Liraglutide (Victoza, Saxenda) |
| November 2025 | added B12 injections; the two together helping, but brain fog and vision symptoms persistI'm also now doing b12 injections and while I can't say for sure, I think the two together is helpingIn context ↗ | Moderate | Vitamin B12 |
| May 2026 | still struggling, but not working has helpedMy boy is now 3 and while I still struggle, not working has helpedIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I haven't had a single crash in two weeks
In context ↗ - Pain & fibromyalgia
my joint pain is almost completely gone
In context ↗ - Brain fog
Yes I have quite intense neurological symptoms and brain fog
In context ↗ - Vision problems
vision stuff sometimes
In context ↗ - Anxiety & low mood
an overall better mood
In context ↗
Ask Miruvor AI
Similar stories
-
Housebound with ME/CFS, needing help showering, now somewhat better with pacing and rest
Tern 17519 developed ME/CFS after brain and nerve damage from anoxia during a resuscitation, and also has POTS and peripheral neuropathy. An October 2024 virus crash left them housebound and needing help showering for about eight months; pacing and rest…
-
Extremely severe, unable to move or talk, improved then relapsed, still severe, bedridden
Bedridden from about age 19, they were extremely severe in 2015-16, unable to move, walk or talk, and improved to moderate-severe in 2019-21 without knowing what helped. Adderall's false energy and months of doctor appointments crashed them to very severe in…
-
Long COVID at its worst mostly lying down, now nearly back to normal with Zepbound
Ill with long COVID from July 2024; at worst sleeping or lying down most of the day, barely functioning, with fatigue, PEM, brain fog, palpitations and POTS. Antihistamines and supplements raised energy within a week, and nattokinase, bromelain and curcumin…
-
Mod-severe ME/CFS, mostly bed bound, small gains from rest and iron then relapse
They fell ill with ME/CFS in May 2000 aged 17 and were hospitalised, then stayed mild for about 15 years. Rest at their parents' with NT Factor, vitamin D, B12 injections and diet brought a two-year remission that flu and overdoing it ended. Covid and…