Long COVID
Somewhat betterIll 3.5 years before improving or writingNeeds ongoing treatment
Long COVID: barely out of his recliner, somewhat better on low-carb diet and anxiety meds
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 3.5 years
- Last post
- Aug 2024
In their words
- Condition: Long COVID
I got covid 3 years ago and never recovered from it.
In context ↗ - Now: Somewhat better
I still have the weakness and can't do anything but the extreme weakness and burning chest and shaking is all gone.
In context ↗ - Began after: COVID
Jan 2021 lost taste and smell and went south from there
In context ↗
Read from 71 of their posts and comments; links to the 38 this page draws on
- Feb 2024
- Aug 2024
- Jul 2021
- Aug 2021
- Aug 2021
- Nov 2021
- Feb 2022
- Oct 2021
- Sep 2021
- Oct 2023
- Dec 2021
- Jan 2022
- Aug 2023
- Feb 2024
- Sep 2023
- Jul 2022
- Apr 2024
- Sep 2022
- Nov 2022
- May 2022
- Oct 2023
- Nov 2023
- Jul 2024
- Sep 2021
- Oct 2021
- Nov 2021
- Mar 2023
- Jan 2024
- Sep 2021
- Oct 2022
- Sep 2023
- Mar 2024
- Feb 2022
- Oct 2022
- Jun 2024
- Nov 2023
- Sep 2022
- Feb 2023
Summary
Lynx 71292 was working six days a week when long COVID began in January 2021 with lost taste and smell. Anxiety soon left him barely able to get out of his recliner, and three years on he could stand only 15 minutes before weakness and breathlessness set in. A very low-carb diet settled his gut after 16 months and anxiety medication controlled his anxiety, but vaccines and nicotine gave nothing and Prozac caused a bad reaction; he spent over $10,000 on care.
Ask Miruvor AI
What they tried
What they credit
Also tried
Dr Martin's Nutrition Premium Magnesium Glycinate· Helped a lotClonazepam· Helped a lotThyme Out Plus· HelpedSkinSmart Eczema· HelpedCooling blanket· HelpedAlprazolam· HelpedMetoprolol· HelpedAlpha lipoic acid· HelpedClub soda with quinine· HelpedCBD oil· HelpedSleeping in a recliner, not lying flat· HelpedBuspirone· HelpedDuloxetine· HelpedIbuprofen· HelpedTime· HelpedSertraline (Zoloft)· No changeModerna COVID vaccine· No changeLevothyroxine· No changeNicotine· No changeRest· No changeAntibiotics· WorseStatin· WorseProzac (fluoxetine)· WorsePepcid· Not said
Their words about each treatment
- Thyme Out Plus · Helped
I use "Thyme Out Plus" to spray on to give me relief.
In context ↗ - SkinSmart Eczema · Helped
Also SkinSmart Eczema works with less smell.
In context ↗ - Cooling blanket · Helped
I even bought a cooling blanket and found out those damn things work.
In context ↗ - Alprazolam · Helped
I just recently was put on Alprazolam 25mg and Metoprolol 25mg two times a day and it's working.
In context ↗ - Metoprolol · Helped
The Metoprolol lowered my heart rate
In context ↗ - Sertraline (Zoloft) · No change
After running out of Alprazolam for 3 days found out the Zoloft does nothing for me.
In context ↗ - Alpha lipoic acid · Helped
I take it daily or my legs get so weak I can barely walk.
In context ↗ - Pepcid · Not said
In one week I found out certain things will cancel out this medication. One big one is Pepcid.
In context ↗ - Moderna COVID vaccine · No change
There was no change at all after the vaccine.
In context ↗ - Club soda with quinine · Helped
club soda with quinine - this helps some I drink about 4 oz before I try to sleep.
In context ↗ - Keto / low-carb diet · Helped
Ketosis, the only thing that really helped me.
In context ↗ - CBD oil · Helped
I tried CBD oil and it help just a little. Nothing to warrant the cost of it.
In context ↗ - Dr Martin's Nutrition Premium Magnesium Glycinate · Helped a lot
Dr Martin's Nutrition Premium Magnesium Glycinate 425mg - This gem got rid of my anxiety.
In context ↗ - Levothyroxine · No change
I have been on 200mcg levothyroxine for 10 years now. That did not help me one bit.
In context ↗ - Sleeping in a recliner, not lying flat · Helped
The single best thing that helped head pressure was not laying down flat.
In context ↗ - Antibiotics · Worse
I get flare ups immediately after taken them
In context ↗ - Statin · Worse
Had to stop my statin it did not get along with me after covid.
In context ↗ - Nicotine · No change
Nope, had nicotine the whole time. One big nothingburger.
In context ↗ - Buspirone · Helped
I'm taking 15mg of BusPIRone and it's working pretty good.
In context ↗ - Clonazepam · Helped a lot
This took my anxiety away completely.
In context ↗ - Duloxetine · Helped
Duloxetine is working for me now with Clonazepam.
In context ↗ - Rest · No change
I just had 15 month's of rest from day one to now. It didn't help that much.
In context ↗ - Prozac (fluoxetine) · Worse
No help. Was on low dose of 10 then boasted to 40 which I had a bad experience with it.
In context ↗ - Escitalopram (Lexapro) · Helped a lot
I was put on Escitalopram and hydroxzine, in 3 days it was 90% better and gone in a month.
In context ↗ - Hydroxyzine Pamoate · Helped a lot
Escitalopram (Lexpro) 15mg in morning and Hydroxyzine Pamoate up to 50mg at night.
In context ↗ - Ibuprofen · Helped
Ibuprofen for headaches, I only found that to work for me.
In context ↗ - Time · Helped
Only time helped for me if you even call that help.
In context ↗
Approaches: H1 antihistamines · SSRIs · Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2021 | COVID-19; lost taste and smell, long COVID followedJan 2021 lost taste and smell and went south from thereIn context ↗ | Not stated | |
| June 2021 | went downhill from anxiety; could barely get out of the chairlate in the fifth month I could barely get out of the chairIn context ↗ | Severe | |
| August 2021 | anxiety meds gave big results in a weekOne week had big results. Not that I'm able to work yetIn context ↗ | Severe | |
| October 2021 | keto week 3 brought constant stomach painon week 3 I got stomach pain 24 hours a day for a whole weekIn context ↗ | Severe | |
| October 2022 | very low-carb diet settled a 15-month gut problemIt wasn't till I went to a very low-carb diet (under 15) did it get better.In context ↗ | Severe | Keto and low-carb diets |
| September 2023 | four hours of feeling normal, then worse than beforeI had 4 hours of my old self and then right back into it worse than it was before it happened.In context ↗ | Severe | |
| October 2023 | bad reaction when Prozac was raised to 40 mgwhen they upped it to 40mg, It felt like I swallowed pure poisonIn context ↗ | Severe | |
| November 2023 | anxiety fully controlled with two medicationsAfter 2 1/2 years, I finally got anxiety fully controled through these two meds.In context ↗ | Severe | |
| August 2024 | anxiety and gut calm, but weakness, breathlessness and racing heart remainI still have the weakness and can't do anything but the extreme weakness and burning chest and shaking is all gone.In context ↗ | Severe |
Adverse events
- Keto and low-carb diets“I was feeling a lot worse and shaking really bad.” In context ↗ Made symptoms worse
- Keto and low-carb diets“on week 3 I got stomach pain 24 hours a day for a whole week” In context ↗ Gut side effects
- COVID vaccination as treatment“I got the vaccine 3 months after I lost taste and smell and got very sick on the first dose” In context ↗ Side effects
- COVID vaccination as treatment“I did get severe anxiety shortly after that and still have it.” In context ↗ Mood or psychiatric effects
- Statins (unspecified)“Had to stop my statin it did not get along with me after covid.” In context ↗ Made symptoms worse
- Sertraline (Zoloft), Duloxetine (Cymbalta), Fluoxetine (Prozac), Escitalopram (Lexapro)“gives me an antidepressant with side effects of insomnia and may cause anxiety. I suffered a week trying to get that mess cleaned up.” In context ↗ Insomnia from treatment
- Fluoxetine (Prozac)“Was on low dose of 10 then boasted to 40 which I had a bad experience with it.” In context ↗ Side effects
- Antibiotics (unspecified)“I get flare ups immediately after taken them” In context ↗ Made symptoms worse
- Clonazepam (Klonopin)“I was on Clonazepam taking 1mg 3 times a day and that knocked me out.” In context ↗ Side effects
- Fluoxetine (Prozac)“when they upped it to 40mg, It felt like I swallowed pure poison. Stopped after one pill.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityLoss of smell or tasteMuscle weaknessPOTS & dysautonomiaPost-exertional malaiseSleep problemsTemperature regulationTinnitus
Their words about their symptoms
- Post-exertional malaise
Muscles get weak after 15 mins on my feet, shortness of breath starts then.
In context ↗ - Sleep problems
when I have bouts of insomnia maybe 3 or 4 hours of sleep
In context ↗ - Headaches & migraine
I got rid of mine after 2 years and a lot of trial and error drugs
In context ↗ - Gut problems
The GI issues was the worse for me and lasted 16 months.
In context ↗ - Light & noise sensitivity
loud sounds would kill me
In context ↗ - Breathlessness
I'm just left with SOB, weakness and anxiety
In context ↗ - Heart symptoms & palpitations
I still have the cardio problem of it going 150 just going to the bathroom.
In context ↗ - Muscle weakness
I still have the weakness and can't do anything
In context ↗ - Anxiety & low mood
I did get rid of my horrible anxiety after 2.5 years of suffering with it.
In context ↗ - Loss of smell or taste
Jan 2021 lost taste and smell
In context ↗ - Tinnitus
Tinnitus just went to the next level.
In context ↗ - Temperature regulation
I suffer from tremors in my hands, fatigue, sweating, general malaise every day for the last 3 years.
In context ↗ - POTS & dysautonomia
I had the vertigo stage, and it was off and on for a while, but went away for me in a month
In context ↗
Ask Miruvor AI
Similar stories
-
Not enough detail to draw a path
Daily nerve pain and brain fog with long COVID, much better after deficiencies corrected
Alpine 75964, a 25-year-old woman, fell ill with COVID in July 2024 and was in pain daily, with nerve pain, brain fog, anxiety and intrusive thoughts. Correcting deficiencies, antihistamines, aspirin, probiotics and other supplements improved her step by…
-
Not enough detail to draw a path
Barely able to walk with long COVID, now improved to 60-80%
A 43-year-old Arizona man developed long COVID in 2022, about two months after a booster, and at times could barely walk, losing 40 lb, mostly muscle. Lexapro, later Wellbutrin, microbiome work, lactoferrin and nicotine patches were among his treatments; he…
-
Long COVID with POTS-like symptoms and brain fog, much better with stasis breathing
A woman developed long COVID in July 2022 after a January 2022 infection, with POTS-like symptoms, tachycardia, adrenaline rushes, PEM and brain fog. Beta blockers started in early 2023 lowered her heart rate but worsened other symptoms; she credits stasis…
-
Bedridden with ME/CFS for a year, much better after iron tablets
Otter 47326 traced 16 years of fatigue, heavy periods and restless legs to iron deficiency. A 2014 burnout left her bedridden for a year; antidepressants and sleep aids made her semi-functional, and iron tablets that raised her ferritin in 2020 drastically…