Bedbound with long COVID, now much better; CPAP helped tiredness
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Apr 2023
In their words
- Condition: Long COVID
I caught Covid back in March 2020 and took months on months to get better.
In context ↗ - At worst: Severe
back in early 2021, when I was still bed bound due to Covid, I could do nothing else but lay in bed and listen to YouTube videos.
In context ↗ - Now: Much better
I am back to probably 85% of precovid self.
In context ↗ - Began after: COVID
I caught Covid back in March 2020 and took months on months to get better.
In context ↗
Summary
They caught Covid in March 2020 and were bedbound by early 2021, taking a year off work. Symptoms included extreme fatigue, muscle and joint pain, twitching, depersonalisation, light and sound sensitivity, headaches, insomnia and numbness. Covid also triggered sleep apnea, and a CPAP mask helped their tiredness. Most symptoms faded; they returned to reduced hours at about 85% of their pre-Covid self, with occasional fatigue.
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What they tried
What they credit
Also tried
Their words about each treatment
- CPAP mask · Helped
I wear a CPAP mask at night which has helped with my tiredness etc.
In context ↗ - time · Helped a lot
the majority of symptoms just went away over time
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 10 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2020 | caught CovidI caught Covid back in March 2020 and took months on months to get better.In context ↗ | Not stated |
| early 2021 | bedbound, off work for a yearback in early 2021, when I was still bed bound due to Covid, I could do nothing else but lay in bed and listen to YouTube videosIn context ↗ | Severe |
| 2023-04-12 | most symptoms gone, back at work on reduced hoursI am back to probably 85% of precovid self. ... when I returned to work, I reduced my hours.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
muscle aches, joint pain
In context ↗ - Neuropathy & tingling
twitching muscles ... pins and needles, numbness
In context ↗ - Light & noise sensitivity
sound and light sensitivity
In context ↗ - Temperature regulation
I had high temperature and had really vivid fever dreams
In context ↗ - Anxiety & low mood
I went through that period of just feeling flat and depressed
In context ↗
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