Long COVID
Moderate → no benefitIll for 5 months
Long COVID fatigue, PEM and breathlessness, no better with pacing or research
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 5 months
- Last post
- Jul 2026
In their words
- Condition: Long COVID
I’m pretty sure I have Long Covid that’s presenting in a very similar manner to ME/CFS
In context ↗ - At worst: Moderate
but U can’t work and my family can barely afford for me to see one doctor
In context ↗ - Now: No benefit
and it’s only getting worse
In context ↗ - Began after: COVID
I got Covid for the second time in February and this time I was hit with debilitating fatigue, PEM, shortness of breath, exercise intolerance, muscle/joint pain and so many other symptoms ever since one week after recovering from the cold
Summary
Vale 65621 fell ill after a second COVID infection in February 2026, with debilitating fatigue, PEM, breathlessness, exercise intolerance and muscle and joint pain a week after recovering. By July 2026 symptoms had only worsened; pacing and research made little difference and they could not work. Antibiotics and root canal retreatment improved their tooth but long COVID symptoms stayed the same or worsened.
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What they tried
Also tried
Their words about each treatment
- retreatment · No change
got retreatment and put on antibiotics after getting LC - tooth is much better, but LC symptoms are same or worsening tbh
In context ↗ - keep trying · Worse
Between the PEM crashes from constantly being told I just need to keep trying
In context ↗ - pacing · No change
regardless of the amount of research and pacing I do, nothing seems to make much difference over these past months
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| February 2026 | second COVID infection; a week after recovery came debilitating fatigue, PEM, breathlessness, exercise intolerance and muscle/joint painI got Covid for the second time in February and this time I was hit with debilitating fatigue, PEM, shortness of breath, exercise intolerance, muscle/joint painIn context ↗ | Moderate |
| 2026-07-13 | symptoms still worsening despite pacing and research; unable to workregardless of the amount of research and pacing I do, nothing seems to make much difference over these past monthsIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
debilitating fatigue, PEM, shortness of breath
In context ↗ - Breathlessness
shortness of breath
In context ↗ - Pain & fibromyalgia
muscle/joint pain
In context ↗ - Anxiety & low mood
devastating for my already damaged mental health from this illness
In context ↗