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ME/CFS No benefitIll for 4 years

Four years of severe ME/CFS fatigue flares and migraines, no better awaiting a doctor

Condition
ME/CFS
At worst
Not stated
Ill for
4 years
Last post
May 2025
In their words
  • Condition: ME/CFSI've had flare ups of severe fatigue that last months over the last 4 years. In context ↗
  • Now: No benefitI recently have had a fatigue flare for the last month In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Coast 88272 reported four years of recurrent severe fatigue flares lasting months, with ocular migraines that flared in spring. A recent month-long fatigue flare followed what they suspected was hard gym exercise and allergies. A severe migraine then left their whole body sore while brain fog and fatigue were less severe, and they wondered whether the flare was subsiding while awaiting a functional doc appointment.

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What they tried

Also tried

meds· No change
Their words about each treatment

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
over the last 4 yearsrecurrent severe fatigue flares lasting months beganI've had flare ups of severe fatigue that last months over the last 4 years. In context ↗
about one month before 2025-05-23fatigue flare after hard gym exercise and allergiesI recently have had a fatigue flare for the last month from what I suspect was going to hard at the gym and also allergies. In context ↗
2025-05-22severe migraine without aura; medication did not helpAnyway, yesterday I got a really bad migraine, no aura this time, meds didn't help at all. In context ↗
2025-05-23brain fog and fatigue less bad; whole body sore; possible flare subsidingToday my whole body is sore, but surprisingly my brain fog/fatigue isn't as bad. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisefatigue flare for the last month from what I suspect was going to hard at the gym In context ↗
  • Brain fogmy brain fog/fatigue isn't as bad In context ↗
  • Headaches & migraineI also suffer from ocular migraines In context ↗
  • Pain & fibromyalgiamy whole body is sore In context ↗

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