Mostly housebound with long COVID, improved with mind-body work then relapsed
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 7 months
- Last post
- May 2026
In their words
- Condition: Long COVID
I got long COVID last August after a relatively mild case of Covid
In context ↗ - At worst: Moderate
was ill for seven months — some bedbound but mostly housebound
In context ↗ - Now: Relapsed
relapse after four months at 100% recovered ... I was literally fine three days ago and now I’m back in hell
In context ↗ - Began after: COVID
I got long COVID last August after a relatively mild case of Covid
In context ↗
Summary
They got long COVID in August 2025 after a mild infection and were ill for seven months, some bedbound but mostly housebound. Mind-body work was credited with a recovery over two months, and they returned to full-time work, walking and travel. After four months at 100% recovered, a bike ride brought back heavy body, exhaustion, a high heart rate and brain fog, and by early May 2026 they were worsening.
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What they tried
What they credit
Also tried
Their words about each treatment
- mind body work · Helped a lot
I recovered over the course of two months thanks to mind body work
In context ↗ - Guanfacine · Helped
Guanfacine helped me a lot
In context ↗ - lithium · Helped
Guanfacine helped me a lot and so does lithium (despite its reputation to the contrary)
In context ↗
Approaches: Brain retraining
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| August 2025 | long COVID after a mild COVID caseI got long COVID last August after a relatively mild case of Covid and was ill for seven months — some bedbound but mostly houseboundIn context ↗ | Moderate |
| after seven months ill (early 2026) | recovered over two months, back to full-time work and travelI recovered over the course of two months thanks to mind body work and have since returned to full time work, walking and travelingIn context ↗ | Recovered |
| 2026-05-01 | relapse after riding a bikea couple of days ago I rode my bike for the first time because I was late to something and didn’t want to take an uberIn context ↗ | Moderate |
| 2026-05-01 | worsening symptoms, fears another long relapseit keeps getting worse with each day, too. yesterday i was tired but now I’ve got that weak and poisoned feelingIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I leave the faucet running which I now realize as a sign that I’m about to crash
In context ↗ - Brain fog
high heart rate, brain fog and soreness
In context ↗ - Pain & fibromyalgia
heavy body, exhaustion, high heart rate, brain fog and soreness
In context ↗ - Heart symptoms & palpitations
heavy body, exhaustion, high heart rate
In context ↗ - Muscle weakness
I’ve got that weak and poisoned feeling
In context ↗ - Headaches & migraine
The burning headaches rarely occur anymore
In context ↗ - Anxiety & low mood
I’m now terrified to go to sleep because I’m scared to death of what will happen when the adrenaline wears off
In context ↗
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