Long COVID that felt like dying, now much better with probiotics and quitting gluten
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Oct 2026
In their words
- Condition: Long COVID
Long Covid is a clotting disorder
In context ↗ - Now: Much better
feeling much better but clearly far from being 100%
In context ↗ - Began after: COVID
i have motility issues from covid because it messes up the microbiome and the gut lining
In context ↗
Read from 31 of their posts and comments; links to the 17 this page draws on
Summary
Long COVID left him 'in hell' and feeling like dying. A 10-day course of rifaximin made him feel normal for weeks before everything came back, and a second round did nothing; high-dose multistrain probiotics helped a lot but only while he kept taking them. Quitting gluten helped 'a ton'. By October 2026 he felt much better but far from 100%, having spent over 20k on tests and supplements.
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What they tried
What they credit
Also tried
Their words about each treatment
- methylfolate · Worse
i did that taking too much methylfolate and i had really bad thought
In context ↗ - multistrain probiotics · Helped a lot
Sadly it only works as long as you take them but for me, it gets me to 90% as i was.
In context ↗ - nattokinase · No change
tried 10k ui per day for a month, didnt do anything
In context ↗ - rifaximin · Helped a lot
had a 10day course of rifaximin and it really helped out...for a month. then everything came back to normal sadly
In context ↗ - curcumin · Helped
it's ok for me but not extraordinary
In context ↗ - sauna or very hot baths · Helped
What helps for me si sauna or very hot baths
In context ↗ - copper · Worse
This is how i got copper overload even in small doses
In context ↗ - quitting gluten · Helped a lot
quitting gluten 2 weeks ago helped me a ton
In context ↗ - Accutane · Much worse
Accutane really pushed me over the edge
In context ↗ - betaine HCL · Helped
taking enough betaine HCL helps a lot to move things along and to digest stuff
In context ↗
Approaches: Alternative therapies · Antibiotics · Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 5 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | Long COVID after a COVID-19 infectioni have motility issues from covid because it messes up the microbiome and the gut liningIn context ↗ | Not stated | |
| — | in hell, felt like dyingused to be in hell too but now i'm much better. Still a long way to go but at least i don't feel like dying anymore.In context ↗ | Not stated | |
| 2025-07 | better than a year earlier but far from 100%I'm way better then i was a year ago but far from being my 100%In context ↗ | Not stated | |
| — | felt like his old self for about a month on rifaximinwhen i took rifaximin for sibo was my old self again for 1monthIn context ↗ | Near normal | Rifaximin / Xifaxan |
| — | everything came back after the rifaximin coursehad a 10day course of rifaximin and it really helped out...for a month. then everything came back to normal sadly.In context ↗ | Not stated | |
| 2025-08 | high-dose probiotics helped with a lotI was taking 150 billion a day spread out and it really helped with a lot but when i stopped again..a lot of shit came back.In context ↗ | Mild | Probiotics and fermented foods |
| 2025-08 | symptoms came back after stopping probioticswhen i stopped again..a lot of shit came backIn context ↗ | Not stated | |
| 2026-01 | quitting gluten helped a tonafter spending a ton on supplements that barely made a dent, quitting gluten 2 weeks ago helped me a tonIn context ↗ | Mild | Gluten-free diet |
| 2026-10 | much better but far from 100% after cutting glutenFor me gluten was like 50% of the problem, been off for like 3 weeks and feeling much better but clearly far from being 100%In context ↗ | Mild | Gluten-free diet |
Adverse events
- Methylfolate (L-methylfolate, 5-MTHF)“i did that taking too much methylfolate and i had really bad thought, managed to understand if after” In context ↗ Mood or psychiatric effects
- Copper“i get those when i do too high dose copper or to much alcohol.” In context ↗ Side effects
- Copper“This is how i got copper overload even in small doses, god damn liver wasn't using it right but couldn't get it out neither” In context ↗ Side effects
- Probiotics and fermented foods“some probiotics helped a ton and some made it worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Gut problems
i have motility issues from covid because it messes up the microbiome and the gut lining
In context ↗ - Brain fog
yes. and thinking critically and self control too. I find that in myself too
In context ↗ - Anxiety & low mood
anxiety went way down and some other benefits
In context ↗ - Vision problems
yeah, all of them got much better, visual snow completely dissapeared.
In context ↗ - Sleep problems
for 2-3 weeks i was doing amazing. sleep perfect, brain focused etc
In context ↗
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