Walking 2x3 minutes a week with ME/CFS, now somewhat better with beta blockers
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 years
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
I'm now 4,5 years in, diagnosed with ME a year ago
In context ↗ - At worst: Moderate
I lost a lot of my stamina. Currently trying to build up with walking 2x 3 minutes a week
In context ↗ - Now: Somewhat better
Now I'm managing once every 3-4 days with relative ease, although I am still using my shower chair.
In context ↗
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
Orchid 54165 fell ill around 2020, first diagnosed with burnout and with ME a year before January 2025. By then they were worse than at onset, walking 2x3 minutes a week and blaming overexertion and a breakup. Beta blockers started in mid-2025 gave them more energy, and by mid-2026 they were showering every 3-4 days with a shower chair while using the paid FreeMe brain-training app.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- rest as much as possible · Worse
This isn't a bad thing of course, but I feel I would've felt better if I also kept moving in a gentle way. I lost a lot of my stamina.
In context ↗ - walking 2x 3 minutes a week · Not said
Currently trying to build up with walking 2x 3 minutes a week, always building up very slowly
In context ↗ - keeping exertion at about 3-4 out of 10 · Not said
trying to keep my exertion at about 3-4 out of 10
In context ↗ - Yoga Nidra · Helped
it took me quite a long time to figure out how to truly rest. Yoga Nidra has definitely been a lifesaver.
In context ↗ - beta blockers · Helped
I started beta blockers about two months ago and yesterday when cycling to my local shopping centre I actually had the energy to go a little faster to get to the traffic light in time.
In context ↗ - FreeMe app · Helped
I have been doing brain training through the (paid) FreeMe app for a year now, and it's really helped me with that stress response.
In context ↗
Approaches: Beta-blockers
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| onset | first symptoms, diagnosed with burnoutWhen I first got symptoms, I was initially diagnosed with burnout.In context ↗ | |
| 2025-01-29 | worse than at onset, only 2x3 minutes of walking a weekDefinitely worse, although there are some obvious reasons for it. ... Currently trying to build up with walking 2x 3 minutes a weekIn context ↗ | |
| 2025-07-25 | more energy, able to cycle faster to the shopsI started beta blockers about two months ago and yesterday when cycling to my local shopping centre I actually had the energy to go a little fasterIn context ↗ | Beta-blockers (unspecified) |
| 2026-07-07 | showering every 3-4 days with a shower chair, using brain trainingNow I'm managing once every 3-4 days with relative ease, although I am still using my shower chair.In context ↗ | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
move however much you comfortably can without causing PEM
In context ↗ - Sleep problems
the less than ideal sleep are uncomfortable but safe
In context ↗
Ask Miruvor AI
Similar stories
-
Bedbound with ME/CFS, now housebound and somewhat better with rest and low-dose naltrexone
After about 1.5 years of ME/CFS with push–crash cycles, they became bedbound for two months in mid-2026, getting up only for the bathroom. They improved slowly with four months of rest, low-dose naltrexone, a beta-blocker, compression and salt/fluids. By…
-
Housebound and mostly in bed with ME/CFS, now much better on rapamycin and low-carb diet
Ill for over a decade, Flint 23355 was at worst housebound and mostly in bed. Over the years she improved, crediting a low-carb, high-fat diet, iron infusions and rapamycin at 4 mg, which helped PEM after a direct 6 mg start caused a massive crash; weekly…
-
Mostly bedbound with ME/CFS, now somewhat better with fludrocortisone and beta blockers
Kestrel 92313 had ME/CFS for about 15 years, mild at first and severe/mostly bedbound (90–95% bedbound) by early 2026. Fludrocortisone, beta blockers, salt and fluids for POTS were part of measures giving about 10% improvement, and they remained severe and…
-
Long COVID left him housebound and unable to work; LDN helped brain fog, then he worsened
A Canadian man in his thirties fell ill with long COVID after an infection in late 2022 and kept working until his condition worsened and he could no longer work. Low-dose naltrexone cleared his brain fog, a beta-blocker helped his POTS, and testosterone…