Moderate ME/CFS, somewhat better over five years while resting at home
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 5 years
- Last post
- Aug 2025
In their words
- Condition: ME/CFS
I was diagnosed with cfs at 14yo, right in the height of covid
In context ↗ - At worst: Moderate
going from moderate to more mild over the last 5 years
In context ↗ - Now: Somewhat better
going from moderate to more mild over the last 5 years
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Trail 37781 was diagnosed with ME/CFS at 14, during the COVID pandemic, and improved from moderate to mild over five years while resting at home. In August 2025, aged 19, they tried a four-hour hotel breakfast trial shift, managed three hours, and crashed, sleeping six hours and still feeling foggy, exhausted and achy. They were left unsure how work could fit within their limits.
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What they tried
What they credit
Also tried
Their words about each treatment
- rest at home · Helped
Thankfully with covid I could rest a lot at home and focus on getting better, going from moderate to more mild over the last 5 years
In context ↗ - part-time work (hotel breakfast trial shift) · Worse
the shift was only 4 hours and I only made it through 3 before pushing myself too hard and sleeping for 6 hours when I got home
In context ↗
Approaches: Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020, age 14 | diagnosed with CFS at 14 during the COVID pandemicI was diagnosed with cfs at 14yo, right in the height of covidIn context ↗ | Moderate |
| 2025 | gradual improvement from moderate to mild over five years with lots of rest at homeThankfully with covid I could rest a lot at home and focus on getting better, going from moderate to more mild over the last 5 yearsIn context ↗ | Mild |
| 2025-08-21 | crashed after 3 hours of a 4-hour hotel breakfast trial shiftthe shift was only 4 hours and I only made it through 3 before pushing myself too hard and sleeping for 6 hours when I got homeIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I only made it through 3 before pushing myself too hard and sleeping for 6 hours when I got home
In context ↗ - Brain fog
I still feel foggy, exhausted, and achy
In context ↗
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