Long COVID
Severe → no benefitIll for 21 months
Long COVID loss of mobility, still unable to walk despite vein stent and painkillers
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 21 months
- Last post
- Jul 2026
In their words
- Condition: Long COVID
I’m not 100% this linked or not to Covid/ covid vaccine.
In context ↗ - At worst: Severe
I got to the point of being unable to walk anymore.
In context ↗ - Now: No benefit
Nothing works. Nothing.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Falcon 21531 reported illness since October 2024, with widespread pain, leg and foot swelling, and eventually loss of mobility. A vein stent and blood thinners were followed by hospitalizations and worse foot symptoms; gallbladder and appendix surgery and c.diff added setbacks. Gabapentin helped briefly; steroids and painkillers did nothing. At the latest post they were still unable to walk, with severe pain, brain fog, fatigue and depression.
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What they tried
Also tried
Their words about each treatment
- vein stent in left iliac vein · No change
I even had an vein stent placed in my left iliac vein being misled that would help.
In context ↗ - Valium · Not said
I was already given Valium
In context ↗ - Plavix · Worse
I was put on plavix and Eliquis whoever my feet ended up worse.
In context ↗ - gallbladder and appendix removal · Not said
I did need my gallbladder and appendix removed.
In context ↗ - antibiotics · Worse
I also ended up with c.diff from all the antibiotics they were throwing at me.
In context ↗ - steroids · No change
been given so many different steroids and pain killers. Nothing works. Nothing.
In context ↗ - Gabapentine · Helped
Gabapentine worked for a very little bit. That stopped working as well.
In context ↗ - Sildenafil citrate (yes, Viagra) · Worse
I'm was on Sildenafil citrate (yes, Viagra) to help open my blood vessels ... Was taken off of it due to passing out.
In context ↗ - propping feet up very high with a fan · Helped
I have found propping my feet up very high helps a lot. With a fan blowing cool on them.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. 1 step has no time and sits in story order between the steps around it. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| October 2024 | illness began with a variety of painsI have been suffering since October of 2024 from a variety of pain(s).In context ↗ | Not stated |
| December 2024 | left calf swelled; pain spread from hips to toes; became unable to walkMy left calf swelled up incredibly large in December 2024. That was only the beginning. Eventually it was increasing in pain and I got to the point of being unable to walk anymore.In context ↗ | Severe |
| May of 2025 | iliac vein stent, hospitalizations, blood thinners; feet became worseThat was the beginning of my hospitalizations. That’s when I was put on plavix and Eliquis whoever my feet ended up worse.In context ↗ | Severe |
| after May of 2025 | gallbladder and appendix removal; gallbladder went septic; c.diffI did need my gallbladder and appendix removed. ... Then my gallbladder went septic.In context ↗ | Severe |
| 2026-07-09 | still unable to walk, with severe pain, brain fog, fatigue, depression and anxietyMany other issues but losing my mobility has definitely affected me the most.In context ↗ | Severe |
Adverse events
- Other surgery (adrenal, lung, venoplasty)“losing a significant amount of blood during the stent placement, I ended up passing out” In context ↗ Low blood pressure or fainting
- Other surgery (adrenal, lung, venoplasty)“That was the beginning of my hospitalizations.” In context ↗ Hospitalisation
- Clopidogrel (Plavix), Apixaban (Eliquis)“That’s when I was put on plavix and Eliquis whoever my feet ended up worse.” In context ↗ Made symptoms worse
- Antibiotics (unspecified)“I also ended up with c.diff from all the antibiotics they were throwing at me.” In context ↗ Gut side effects
- Sildenafil (Viagra)“Was taken off of it due to passing out.” In context ↗ Low blood pressure or fainting
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
Both my legs and feet in pain.
In context ↗ - Brain fog
Brain fog, memory loss
In context ↗ - Anxiety & low mood
EXTREMELY horrible depression, and anxiety.
In context ↗ - Gut problems
I hadn’t been able to eat normal in months due to bad gallbladder/appendix
In context ↗ - POTS & dysautonomia
I ended up passing out while they were trying to discharge us.
In context ↗