ME/CFS fatigue, PEM and pain after long COVID; improved then relapsed off antivirals
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Feb 2025
In their words
- Now: Relapsed
Once I went off antivirals and antibiotics I eventually crashed again. ... I couldn’t replicate the recovery.
In context ↗
Summary
They had long COVID and recovered on antivirals and antibiotics, then crashed after stopping them and could not repeat the recovery. By 2025 they still had fatigue, post-exertional malaise and pain, and reported benefit from a PEMF mat alongside low-dose naltrexone, nicotine patches and R-lipoic acid. They said PEMF was not a cure but as important as those other treatments, helping energy, PEM and pain.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- antivirals · Helped a lot
Once I went off antivirals and antibiotics I eventually crashed again.
In context ↗ - PEMF (OMI full body mat) · Helped
It’s not a cure but I consider it as important as my ldn and the nicotine patch and R lipoic acid
In context ↗
Approaches: Alternative therapies · Antibiotics · Supplements
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| before April 2023 | recovered on antivirals and antibioticsI couldn’t replicate the recovery.In context ↗ | |
| April 2023 | crashed after stopping antivirals and antibioticsOnce I went off antivirals and antibiotics I eventually crashed again.In context ↗ | |
| January-February 2025 | using a PEMF mat, which helps energy, PEM and painIt’s not a cure but I consider it as important as my ldn and the nicotine patch and R lipoic acidIn context ↗ | PEMF |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Fatigue and PEM.
In context ↗ - Pain & fibromyalgia
I think it helps with pain.
In context ↗
Ask Miruvor AI
Similar stories
-
Long COVID at 20-40% of baseline, somewhat better with LDN and nicotine patches
Maple 26677 developed long COVID in 2023 after an omicron infection, with tachycardia, breathlessness, brain fog and PEM that left them at 20-40% of baseline while still working. A tick bite brought babesia, and they credited nicotine patches and low-dose…
-
Mostly bedbound with ME/CFS, now somewhat better with mitochondrial supplements
She traced fatigue, pain and PEM to childhood, worsening after a mouldy school and years of pushing through; by 2024 she was mostly bedbound. Mitochondrial supplements, B vitamins and amino acids helped somewhat. She hoped to trial low-dose naltrexone, but…
-
Long COVID with tremors and brain fog, somewhat better on duloxetine and nicotine patches
A woman in her 50s fell ill with a flu-like virus in February 2020, later developing tremors, electric sensations, dysautonomia, brain fog and PEM. Duloxetine reduced tremors and anxiety, nicotine patches helped brain fog, and a blinded Paxlovid trial gave…
-
Long COVID with ME/CFS-type symptoms, somewhat better with LDN and stellate ganglion block
After COVID-19 in May 2020, she had ME/CFS-type long COVID and later POTS, with remissions and relapses after strep, a too-long hike, reinfection and the bivalent booster. By 2023 she was still working, though with recurring crashes, and thought she might…