Bedridden for three weeks with long COVID, much better after time and strict diet
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 years
- Last post
- May 2025
In their words
- Condition: Long COVID
I’ve had pots like symptoms since Covid in 2020
In context ↗ - At worst: Severe
I was bed ridden for about 3 weeks and thought I was seriously dying.
In context ↗ - Now: Much better
I still struggle with a few things after 5 years of this. ... I'm improving bit by bit each day. Long way to go
In context ↗ - Began after: COVID
Got sick in July and been riding the roller coaster ever since!
Read from 16 of their posts and comments; links to the 11 this page draws on
Summary
A Florida teacher who fell ill with COVID in July 2020 was bedridden for about three weeks at one point and later had twitching, internal vibrations and tension headaches. He improved from about month 12-13, crediting time and a strict diet and self-care routine including exercise and meditation. He still teaches and walks 10,000 steps a day, but says he still struggles with a few things after five years.
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What they tried
What they credit
Also tried
Their words about each treatment
- complete change in my diet · Helped
my complete change in my diet when I was first out of commission for like a month in my bed
In context ↗ - Propranolol · Helped
I have no problems going to work (teacher) and have a fairly easy time sleeping
In context ↗ - Xanax · Helped
Granted I take a low dose of Xanax to knock me out.
In context ↗ - atenolol · Worse
atenolol truly made me feel like I was slowly dying
In context ↗ - epsom salt bathes · Helped
Stuff like epsom salt bathes and using tens units have helped me quite a bit.
In context ↗ - deep tissue massages · Helped
Also have a great massage therapist for deep tissue massages that does wonders for me as well!
In context ↗ - walks up to 3 miles · Helped
I’ve at least felt fortunate enough to be able to work back up to going on 3 mile walks
In context ↗ - routine of zen based around sleep · Helped
A routine of zen based around sleep has helped me tremendously not just with my symptoms
In context ↗ - brain retraining · Helped a lot
my brain desperately needed to be retrained from the ground up ... ever since I recognized that my brain was the issue I started to gradually get better
In context ↗ - monitoring stimulation and adjusting the evening · Helped
constantly monitor how stimulated I am day to day and adjust my evening around it
In context ↗ - aerobic exercises · Helped
aerobic exercises, constantly monitor how stimulated I am day to day
In context ↗ - 10k steps a day · Helped
at least 10k steps a day
In context ↗ - daily stretching · Helped
daily stretching for at least 10 minutes in the morning when waking up and before bed
In context ↗ - natural sunlight · Helped
get plenty of natural sunlight
In context ↗ - meditation · Helped
meditate every Saturday and Sunday for at least 30 minutes
In context ↗ - stopped drinking any sort of caffeine · Not said
I stopped drinking any sort of caffeine
In context ↗
Approaches: Brain retraining · Exercise and activity · Mind-body practices · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 11 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| July 2020 | COVID illness beginsGot sick in July and been riding the roller coaster ever since! 29MIn context ↗ | Not stated |
| 2021 (around month 11) | bedridden for about three weeksI was bed ridden for about 3 weeks and thought I was seriously dying.In context ↗ | Severe |
| 2021 (around month 12-13) | started to feel better; back to work and 3 mile walksIt took me around month 12/13 for me to feel like I was starting to feel better.In context ↗ | Mild |
| September 2024 | panic attacks brought back blood pooling in the handsI recently had a couple panic attacks that past week and these symptoms are back with a vengeance.In context ↗ | Mild |
| May 2025 | still improving bit by bit while teaching and exercisingI'm improving bit by bit each day. Long way to goIn context ↗ | Mild |
Adverse events
- Propranolol (Inderal)“Had to take a small dose because my body HATES being on beta blockers it seems. ... it felt like I ran into a truck with how much it slowed everything down in me.” In context ↗ Side effects
- Atenolol (Tenormin)“atenolol truly made me feel like I was slowly dying.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
Whole body twitching was my main symptom.
In context ↗ - Headaches & migraine
the contractions have been causing daily tension headaches
In context ↗ - Anxiety & low mood
I’ve never dealt with anxiety one bit until this but now it comes and goes for no reason
In context ↗ - POTS & dysautonomia
I’ve had pots like symptoms since Covid in 2020
In context ↗ - Brain fog
have helped me quite a bit on days where I had a lot of brain fog
In context ↗
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