Housebound long COVID, now nearly back to normal with time and supplements
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 1 year
- Last post
- Jan 2023
In their words
- Condition: Long COVID
Covid caused that for me now it comes in waves that’s the only thing that lingered
In context ↗ - At worst: Moderate
Couldn’t even leave the house to take my son to school
In context ↗ - Now: Near normal
Nearly 100% , been a year. So much better than I was with all the symptoms, the panicking and anxiety adrenaline is a thing of the past.
In context ↗ - Began after: a vaccination
I have all this since the day after my vaccine before ever having Covid.
Read from 17 of their posts and comments; links to the 11 this page draws on
Summary
They developed tingling in their hands, feet, legs and tongue, and twitching, the day after a COVID vaccination in late 2021, and later had tinnitus, floaters, head pressure and panic attacks that at one point left them housebound. They improved gradually, some benefit by four months and continuously fine from eight months, and by January 2023, a year in, were nearly 100 per cent, mentioning time and supplements such as B complex, electrolytes and magnesium.
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What they tried
What they credit
Also tried
Their words about each treatment
- b complex · Helped
since iv been taking b complex it seems to have got better or maybe it’s just time ?
In context ↗ - supplement · Helped
what has helped me is taking electrolyte drink daily, supplement, slow exercise I do swimming I feel it calms me
In context ↗ - electrolyte drink daily · Helped
what has helped me is taking electrolyte drink daily
In context ↗ - slow exercise / swimming · Helped
slow exercise I do swimming I feel it calms me
In context ↗ - magnesium · Helped
magnesium , and I take aspirin sometimes
In context ↗ - aspirin · Helped
and I take aspirin sometimes
In context ↗ - iron · Not said
Deficient in iron & folate so I’m taking these now
In context ↗ - NAC · Not said
I am taking vitamins NAC and multivitamins
In context ↗
Approaches: POTS medication · Anticoagulants · Exercise and activity · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| December 2021 | tingling and twitching began the day after a vaccine, before any Covid infectionI got tingling the day after my vaccine in hands feet legs and tongueIn context ↗ | Mild |
| early 2022 | severe panic and anxiety, housebound, crying all dayCouldn’t even leave the house to take my son to school ... I’d cry all day every day and wake in the night panickingIn context ↗ | Moderate |
| 4-6 months in | panic and anxiety eased after 4-6 monthsIt went away over time 4-6 months ishIn context ↗ | Mild |
| months 4-8 | relapses, some days fine and others horrendousthen I had relapses some days would be fine others horrendousIn context ↗ | Mild |
| August 2022 (8 months in) | continuously fine with no relapses from 8 monthsprob since 8 months iv been continuously fine no relapseIn context ↗ | Mild |
| January 2023 | nearly 100% better, panic and anxiety goneNearly 100% , been a year.In context ↗ | Near normal |
Adverse events
- “I got tingling the day after my vaccine in hands feet legs and tongue, 5 months on it’s less severe but still there” In context ↗ Nerve pain
- “I have all this since the day after my vaccine before ever having Covid. It does die down but I get flare ups around my period.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
I got tingling the day after my vaccine in hands feet legs and tongue
In context ↗ - Anxiety & low mood
I had this so bad I wrote my kids a letter thought I was gonna die.
In context ↗ - Tinnitus
Relentless for 4 months now at month 7 i hardly notice it defo has improved a lot
In context ↗ - Vision problems
Like a drunk feeling and defo loads of floaters
In context ↗ - Headaches & migraine
feel pressure in my head every single time
In context ↗ - POTS & dysautonomia
Covid caused that for me now it comes in waves
In context ↗ - Breathlessness
I just felt breathless and hot with Covid and a bit dizzy
In context ↗
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