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Long COVID Moderate → somewhat betterIll 2 years before improving or writing

Long COVID setback after reinfection, somewhat better with Paxlovid

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
2 years
Last post
Aug 2024
In their words
  • Condition: Long COVIDIt meant I was only set back in my long Covid recovery a few weeks, rather than several months. In context ↗
  • At worst: ModerateI had been contemplating a return to work in September; now I’m bracing for the worst. In context ↗
  • Now: Somewhat betterI had Paxlovid during my most recent case of Covid, and if I had not, I would still be suffering. It meant I was only set back in my long Covid recovery a few weeks, rather than several months. In context ↗
  • Began after: COVIDIt meant I was only set back in my long Covid recovery a few weeks, rather than several months. In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on

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Summary

Crane 58468 was about two years into long COVID recovery when a COVID reinfection in July 2024 threatened their progress. They took Paxlovid through a University of Toronto study, which they credit with limiting the setback to a few weeks rather than months. They still had dizziness and palpitations, and had relapses lasting days to weeks.

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What they tried

What they credit

Their words about each treatment
  • Paxlovid · HelpedIt meant I was only set back in my long Covid recovery a few weeks, rather than several months. In context ↗

Approaches: Antivirals

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
2022long COVID began, roughly two years before July 2024my progress from the last two years In context ↗Not stated
by July 2024relapse after sex, lasting a few days to a few weeks, repeatedlyYes, this happens to me; I’ve had a relapse every time. A couple of times it lasted a few weeks, honestly. Sometimes just a few days. In context ↗Not stated
mid-July 2024huge flare, then a COVID reinfectionMy last experience a couple weeks ago was a huge flare followed by a covid reinfection, so this month has really been something, ha. In context ↗Not stated
2024-07-27COVID reinfection; feared losing two years of progressI also just was reinfected, and am terrified my progress from the last two years will simply vanish and I’ll be back to square one. In context ↗Not stated
2024-08-31Paxlovid limited the reinfection setback to a few weeksIt meant I was only set back in my long Covid recovery a few weeks, rather than several months. In context ↗MildPaxlovid / nirmatrelvir

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseYes, this happens to me; I’ve had a relapse every time. A couple of times it lasted a few weeks, honestly. Sometimes just a few days. In context ↗
  • POTS & dysautonomiait feels like my LC symptoms are reduced a bit (dizziness, heart palpitations, etc have been less) In context ↗
  • Heart symptoms & palpitationsheart palpitations, etc have been less In context ↗
  • Headaches & migraineI get an almost instant headache that lasts for days and days, much worse than my normal headache In context ↗
  • Pain & fibromyalgiathe last time I noticed terrible joint pain, it was almost like the flare was circulating through every symptom for about a week In context ↗
  • Muscle weaknessfatigue, weakness, shortness of breath In context ↗

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