ME/CFS
Mild → no benefit
ME/CFS with palpitations and brain inflammation, no improvement after treatments
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Jun 2024
In their words
- Condition: ME/CFS
The clinic is good at fixing psychiatric issues which cfs is not.
In context ↗ - At worst: Mild
I can work muscles to failure 15 min at a time with like 2 hours laying down breaks.
In context ↗ - Now: No benefit
weed is the only thing thats made me feel better (no cure tho)
In context ↗
Read from 13 of their posts and comments; links to the 8 this page draws on
Summary
A man with ME/CFS described palpitations after workouts, brain inflammation and an ammonia smell. Low-dose Abilify at 0.2 mg worsened dissociation, headache and racing thoughts; LDN was smoother. Cannabis was the only thing that made him feel better, but it did not resolve the illness. Home workouts to failure left baseline unchanged. A bad fever gave a four-day remission; a $5,000 SPECT scan was not useful.
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What they tried
Also tried
memantine· Helped · wore offstatins· Helpedweed· Helpedresting when needed· Helpedabstaining from masturbation and sexual thoughts· HelpedLDN· No changeweight lifting / anaerobic workouts· No changeLDA· WorseCoQ10· Not saidMolecular H2· Not saidEnada ATP· Not saidHBOT· Not saidproprietary nootropic mix (brain boost)· Not said
Their words about each treatment
- memantine · Helped
Next steps include retry memantine (switched symptoms off a few days)
In context ↗ - LDN · No change
LDN ( maybe didnt take long enough)
In context ↗ - statins · Helped
with statins took me out of the stroke danger zone
In context ↗ - HBOT · Not said
40 days HBOT 1.3-1.5 atm
In context ↗ - proprietary nootropic mix (brain boost) · Not said
Their proprietary nootropic mix (brain boost on their website)
In context ↗ - weed · Helped
tbf weed is the only thing thats made me feel better (no cure tho)
In context ↗ - LDA · Worse
Sadly I stopped lda after a couple weeks at the lowest dose. Really worsened brain stuff (dissociation, headache, racing thoughts)
In context ↗ - weight lifting / anaerobic workouts · No change
It hasn't helped or hurt my baseline so I figure why not.
In context ↗ - resting when needed · Helped
The key for me is resting when needed so like 15 minutes then rest and hour or two.
In context ↗ - abstaining from masturbation and sexual thoughts · Helped
avoiding masturbating and sexual thoughts has been very effective
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2024-06-05 | Cannabis made them feel better, but did not resolve the illnessweed is the only thing thats made me feel betterIn context ↗ | |
| 2024-06-06 | Low-dose Abilify worsened brain symptomsReally worsened brain stuff (dissociation, headache, racing thoughts)In context ↗ | Low-dose Abilify / aripiprazole |
| 2024-06-27 | Four-day remission after a bad fevera 4 day remission after a bad feverIn context ↗ | |
| 2024-06-30 | Baseline steady; short home workouts with long reststhe ol baseline is steadyIn context ↗ |
Adverse events
- Low-dose Abilify / aripiprazole“Sadly I stopped lda after a couple weeks at the lowest dose. Really worsened brain stuff (dissociation, headache, racing thoughts)” In context ↗ Mood or psychiatric effects
- Everyday exercise and activity“Do get heart palpitations when I work out but the ol baseline is steady.” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- Brain fog
clouding my already fried brain
In context ↗ - Heart symptoms & palpitations
Do get heart palpitations when I work out
In context ↗ - Headaches & migraine
dissociation, headache, racing thoughts
In context ↗