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Long COVID Mild → somewhat betterIll 2 years before improving or writingNeeds ongoing treatment

Long COVID nerve pain and tremors, somewhat better with neurofeedback and beta blockers

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
2 years
Last post
Mar 2025
In their words
  • Condition: Long COVIDI had been dealing with lc for a couple of years In context ↗
  • At worst: MildMy biggest symptoms are severe nerve pain, tremors, spasms, headaches, and fatigue. In context ↗
  • Now: Somewhat betterI don't think it cures anything but it definitely helped me overall ... And got better.
  • Began after: COVIDever since the day after I got covid In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on

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Summary

Long COVID after a COVID infection brought severe nerve pain, internal tremors, spasms, headaches, fatigue and hair loss; at worst pain made talking difficult. Neurofeedback, started after a couple of years of LC, cut a pain peak from 10 to 7; after a break, returning brought a worsening within 24 hours, then more sessions helped. Quitting smoking worsened things at first, then supplements, bloodwork and an anti-inflammatory diet helped, and beta blockers cut tremors by 80%.

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What they tried

Also tried

beta blockers· Helped a lotsalonpas / salonpas gel· Helpedred light therapy· Helpedsupplements· Helpedeating anti inflammatory· Helpedquitting smoking· Worse
Their words about each treatment
  • neurofeedback · HelpedI don't think it cures anything but it definitely helped me overall. In context ↗
  • salonpas / salonpas gel · HelpedThe only temporary relief I've found is salonpas or salonpas gel. In context ↗
  • red light therapy · HelpedI used red light therapy and it worked but all the hair that grew was grey. In context ↗
  • beta blockers · Helped a lotI'm on beta blockers now and it helps 80% In context ↗
  • quitting smoking · WorseWas worse at first In context ↗
  • supplements · Helpedstarted taking supplements ... And got better In context ↗
  • eating anti inflammatory · Helpedeating anti inflammatory, etc. And got better In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
onsetlong COVID after a COVID infectionever since the day after I got covid In context ↗
over a year before October 2024pain peak so severe they could barely talk and cancelled everything except neurofeedbackone day i was in so much pain I could barely talk. I canceled everything but neurofeedback. In context ↗
over a year agoneurofeedback cut a pain peak from 10 to 7my pain went from a 10 to a 7. It didn't fix it but I was able to breathe In context ↗
—stopped neurofeedback and symptoms worsened again within 24 hoursI stopped going. After a while decided to pop back in and my symptoms got worse all over again within 24 hours. In context ↗
—more neurofeedback sessions helped againBut a few more sessions and some changes and they got better again. In context ↗
2024-12-12beta blockers reduced tremors by about 80%I'm on beta blockers now and it helps 80% In context ↗Beta-blockers (unspecified)
2025-03-19quit smoking; then bloodwork, supplements and anti-inflammatory diet, and improvedWas worse at first but then got bloodwork done, started taking supplements, eating anti inflammatory, etc. And got better. In context ↗

Adverse events

  • Neurofeedback“About 30 min into the season i had a very sharp pain that made me yell out. So the therapist switched some things” In context ↗ Nerve pain

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaYes, ever since the day after I got covid. The only temporary relief I've found is salonpas or salonpas gel. In context ↗
  • Neuropathy & tinglingMy biggest symptoms are severe nerve pain In context ↗
  • Headaches & migrainesevere nerve pain, tremors, spasms, headaches, and fatigue In context ↗
  • Hair lossI lost hair to long covid. I used red light therapy and it worked but all the hair that grew was grey. In context ↗

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