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Long COVID Moderate → relapsedIll 18 months before improving or writing

Long COVID brain fog and fatigue improved, then reinfection caused relapse

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
18 months
Last post
Jan 2022
In their words
  • At worst: Moderatewent from running 5+ miles routinely to barely being able to walk half a mile In context ↗
  • Now: Relapsedhad long covid was probably 75-80% recovered and got it in early January 2022 and while not as bad as the first time the brain fog and fatigue shot right back to how it was after the first round. In context ↗
  • Began after: COVIDHad covid In late February 2020
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Valley 92698 got COVID-19 in February 2020 and was left with fatigue, brain fog and reduced lung capacity, cutting running from five miles to barely walking half a mile and ending a PhD plan. A neurologist found ADHD-level cognitive loss and prescribed stimulants, with anti-anxiety, asthma and migraine drugs. Cognition improved from autumn 2021 and reached about 75-80% recovered, but a reinfection in early January 2022 brought brain fog, fatigue and anxiety back.

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What they tried

Also tried

adhd meds· Helpedinhaler· Not saidanti-anxiety meds· Not saidasthma meds· Not saidmigraine medicine· Not said
Their words about each treatment
  • inhaler · Not saidhad to go on and inhaler and multiple rounds of respiratory testing In context ↗
  • adhd meds · Helpedit does help but I still had problems with symptoms for over a year In context ↗
  • anti-anxiety meds · Not saidI ended up on anti-anxiety meds, adhd meds, asthma meds In context ↗
  • asthma meds · Not saidI think they were just trying shit to try and treat the symptoms In context ↗
  • migraine medicine · Not saidmigraine medicine for headaches I started getting on a frequent basis In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
late February 2020COVID-19 infection; fatigue, memory and concentration problems, reduced lung capacitywent from running 5+ miles routinely to barely being able to walk half a mile In context ↗Moderate
August/September 2021memory and cognition improved; reduced ADHD meds and stopped anti-anxiety medsI noticed significant improvements in my memory and cognition start around august/September 2021 In context ↗Mild
late December 2021 to early January 2022COVID reinfection brought back brain fog, fatigue and anxietyright after Christmas I get covid again In context ↗Moderate
2022-01-25brain fog, fatigue and anxiety back near their level after the first infectionwhile not as bad as the first time the brain fog and fatigue shot right back to how it was after the first round In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Brain fogthe Biggest issue I had was concentration and memory issues In context ↗
  • Breathlessnessall testing showed I had reduced lung capacity In context ↗
  • Headaches & migrainemigraine medicine for headaches I started getting on a frequent basis In context ↗
  • Anxiety & low moodthe anxiety isn’t as bad as at its peak but definitely returned as well In context ↗
  • Sleep problemsunable to maintain a sleep schedule In context ↗
  • Loss of smell or tastemy taste is just coming back a few weeks later In context ↗

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