ME/CFS
Mild → somewhat better
ME/CFS with brain fog and migraines, somewhat better with low-dose naltrexone
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jun 2024
In their words
- Condition: ME/CFS
I have been diagnosed with CFS (I also had EBV before I got Covid- 3x times)
In context ↗ - At worst: Mild
Also a creative and art/waldorf teacher (mentally/emotionally exhausting job)… I’m still figuring it out too. Some days are better than others.
In context ↗ - Now: Somewhat better
I see some improvements but not 100%
In context ↗ - Began after: COVID
before I got Covid
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Kite 15763, a Waldorf art teacher, developed long COVID with brain fog and migraines and was diagnosed with CFS, having had EBV three times before COVID. Low-dose naltrexone for almost a year brought some improvement, mainly for chronic pain, but not 100%. Generic Provigil helped energy but didn't seem to help brain fog and seemed to give them free-floating anxiety. Pumpkin seed oil was next.
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What they tried
Also tried
Their words about each treatment
- LDN · Helped
I’m on LDN for almost a year now ... it’s helped with more of my chronic pain issues.
In context ↗ - generic Provigil · Helped
It helps with energy but not seemingly brain fog.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | long COVID after a COVID infection, later diagnosed as CFSI also had EBV before I got Covid- 3x timesIn context ↗ | Not stated | |
| — | some improvement on low-dose naltrexone, mainly for chronic painI'm on LDN for almost a year now… I see some improvements but not 100%In context ↗ | Mild | Low-dose naltrexone |
| 2024-06-09 | still teaching, brain fog and migraines persistingSome days are better than others.In context ↗ | Mild |
Adverse events
- Modafinil / armodafinil“Like you, I think the Provigil gives me some free floating anxiety since it’s a stimulant.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
differentiating the brain fog from other things
In context ↗ - Headaches & migraine
I get migraines
In context ↗ - Pain & fibromyalgia
it's helped with more of my chronic pain issues
In context ↗ - Anxiety & low mood
the Provigil gives me some free floating anxiety since it's a stimulant
In context ↗