Moderate ME/CFS, somewhat better; Primal Trust eased anxiety
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I’m also moderate and just got mine out two weeks ago under general anesthesia
In context ↗ - At worst: Moderate
I’m also moderate
In context ↗ - Now: Somewhat better
I still don’t have energy to do as much as I did before ... when I was sicker
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Harbor 29009 described themselves as moderate with ME/CFS and MCAS. Wisdom teeth removal under general anesthesia in January 2026 brought a hard crash, which they blamed on an MCAS reaction to painkillers, new food reactions and a week off LDN; two weeks later they were just starting to recover. By July 2026 they still had less energy than before, though Primal Trust exercises had eased some illness-related anxiety.
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What they tried
What they credit
Also tried
Their words about each treatment
- wisdom teeth removal · Worse
I crashed pretty hard and am just starting to recover
In context ↗ - pain meds · Worse
I had an MCAS reaction to the pain meds they gave me, which led to me reacting to food as well
In context ↗ - LDN · Helped
I had to stop my LDN for a week for the anesthesia
In context ↗ - Primal Trust · Helped
I found some of the exercises helpful for working through trauma and calming down the anxiety loop
In context ↗ - spirit work / offerings · Helped
I’ve benefitted from maintaining communication and good relationships with the spirits around me
In context ↗ - lymphatic massage · Worse
I did a lymphatic massage and felt worse for several days
In context ↗
Approaches: Alternative therapies
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | became ill with ME/CFSthe anxiety loop that I developed when I first got sickIn context ↗ | Not stated |
| 2026-01-15 | hard crash after wisdom teeth removal under general anesthesiaI crashed pretty hard and am just starting to recoverIn context ↗ | Moderate |
| 2026-07-27 | Primal Trust exercises eased illness-related anxietyI was able to calm that anxiety a bitIn context ↗ | Moderate |
| 2026-10-05 | still limited by low energy; neck shocks settled after lymphatic massageI still don’t have energy to do as much as I did beforeIn context ↗ | Moderate |
Adverse events
- “I had an MCAS reaction to the pain meds they gave me, which led to me reacting to food as well” In context ↗ Allergic reaction / anaphylaxis
- Manual lymphatic drainage“I did a lymphatic massage and felt worse for several days” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I crashed pretty hard and am just starting to recover
In context ↗ - Mast cell (MCAS) & allergies
I had an MCAS reaction to the pain meds they gave me, which led to me reacting to food as well
In context ↗ - Anxiety & low mood
calming down the anxiety loop that I developed when I first got sick
In context ↗ - Flu-like symptoms
I had a swollen and painful lymph node on the side of my neck
In context ↗
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