Long COVID
Moderate → somewhat betterIll 3 years before improving or writingNeeds ongoing treatment
Long COVID chest pain and racing heart, now somewhat better with ketotifen
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I am 34 years old clean bill of health until getting long covid.
In context ↗ - At worst: Moderate
Sedentary lifestyle for 3 years because anything other than walking will give me bad chest pain.
In context ↗ - Now: Somewhat better
Im more stable now. I am on year 3. ... Even staying on this track life is still hard for me.
In context ↗ - Began after: COVID
Mine all started from covid.
Read from 65 of their posts and comments; links to the 33 this page draws on
Summary
Puffin 94896, a 34-year-old man in Missouri, developed long COVID in 2023 with daily left-side chest pain, racing heart and electric jolts that left him sedentary for three years. A cannabis gummy that triggered a seizure-like episode and a later reinfection worsened him. Supplements and medicines, metoprolol, ketotifen and avoiding triggers made him more stable, but he still had daily pain, breathlessness and oxygen dips.
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What they tried
Also tried
metoprolol· Helped a lotsalon pas patch· Helped a lotPepcid· Helped · wore offallergy pill· Helped · wore offgabapentin· Helpedseveral of the pills he's taking· Helpedketotifen· Helpedheat pad· Helped · wore offSenokot (senna)· Helpedtherapist and psychiatrist· Helpeddeep breath and clearing the mind· Helpedcutting out sugars, carbs, processed food and dairy· Helpedcutting out sugars, carbs, processed food and dairy· Helpedcutting out sugars, carbs, processed food and dairy· HelpedLDN· Helpedibuprofen· Worsetylenol· Worsecromolyn liquid· WorseNAD+· Worseprednisone· WorseOT· Worsepropranolol· Worseaspirin· Worsenatto· Worsesleep gummy (dispensary)· Much worseAtivan· Not saidk2+D3· Not saidB12· Not saidvit C· Not saidApple Watch· Not saidomeprazole· Not saidMiralax· Not saidL-theanine· Not saidmagnesium citrate· Not saidDiphenhydramine (Benadryl)· Not said
Their words about each treatment
- metoprolol · Helped a lot
Metoprolol has been the effective treatment.
In context ↗ - avoiding triggers / staying under threshold · Helped
What has worked for me is honestly avoiding triggers.
In context ↗ - Pepcid · Helped
You could take a pepcid and allergy pill and that should help with the histamine issues. However, its not helping me lately but it has in the past.
In context ↗ - allergy pill · Helped
so i take the pepcid and allergy relief which both seem to work
In context ↗ - gabapentin · Helped
Doesn’t solve everything but it def takes some of the tingle away and other seizure feeling crap away.
In context ↗ - sleep gummy (dispensary) · Much worse
I tried about 15mg of sleep gummy of my girlfriends (dispensary) and had a seizure, stroke.
In context ↗ - several of the pills he's taking · Helped
I started taking several of the pills hes taking and now i could atleast work a job.
In context ↗ - ibuprofen · Worse
if i take ibuprofen or tylenol, or any of my daily supplements, i get heart palpitations
In context ↗ - tylenol · Worse
I have grown sensitive to steroids, acetaminophen, anti-inflammatory, supplements, some vitamins.
In context ↗ - cromolyn liquid · Worse
Cromolyn liquid gave me heart palpitations and headaches.
In context ↗ - ketotifen · Helped
I switched to ketotifen which really helped me.
In context ↗ - NAD+ · Worse
I was taking NAD + Once a day for long covid symptoms. Then suddenly, i started getting symptomatic.
In context ↗ - Ativan · Not said
I am also on ativan for my weird flares that present as convulsions.
In context ↗ - prednisone · Worse
I was able to take prednisone but since my long covid i cant take it. I get racing heart and heart palpitations.
In context ↗ - heat pad · Helped
For my chest pain, i was able to initially use heat pad, that stopped working.
In context ↗ - salon pas patch · Helped a lot
Now, I use a salon pas patch. That helps my chest pain tremendously.
In context ↗ - Senokot (senna) · Helped
my functional med doc put me on sennokot to have a daily bowel movement, and now i can lay on my left side
In context ↗ - therapist and psychiatrist · Helped
I see a therapist, a psychiatrist, and a therapist. My anxiety is well managed.
In context ↗ - deep breath and clearing the mind · Helped
when it starts i take a deep breath and clear my mind of the stressful thoughts and it stops immediately almost always
In context ↗ - cutting out sugars, carbs, processed food and dairy · Helped
I cut out sugars, carbs, processed, diary, and candy, chocolate and most of my tingling went away.
In context ↗ - k2+D3 · Not said
Currently taking the zyrtec, pepcid, keto, k2+D3, vit C, b12, gabapentin, and metoprolol.
In context ↗ - B12 · Not said
B12. L-theonine, k2+ magnesium cit.
In context ↗ - LDN · Helped
I will say since starting LDN it is decreasing and im having days of enjoyment with things i used to love.
In context ↗ - OT · Worse
I just completed OT. It caused me to flare pretty much every session.
In context ↗ - propranolol · Worse
My doc wanted me to take propanolol over my metoprolol but when i switched the chest pain that i have daily got even worse
In context ↗ - aspirin · Worse
My lc has caused me to get tachycardic from aspirin, and natto
In context ↗ - Apple Watch · Not said
I currently use an Apple Watch
In context ↗ - pray · Helped
do only things that help me like get sunlight, take light brisk walks. Socialize. Pray etc.
In context ↗ - omeprazole · Not said
Allergy, pepcid, ketotifen, omeprazole, LDN, gabapentin, beta blocker metoprolol, albuterol.
In context ↗ - Diphenhydramine (Benadryl) · Not said
I think that was one of the first meds i grew intolerant to. I would itch all over strangely
In context ↗
Approaches: Alternative therapies · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2023 | long COVID began with left-side chest pain, racing heart and electric joltsMy long covid pretty much starter with chest pain.In context ↗ | Moderate | |
| 2025 | in hell, not able to work, before starting a supplement and medicine stackNgl i was in hell. I started taking several of the pills hes taking and now i could atleast work a job.In context ↗ | Moderate | |
| September 2025 | started several supplements and medicines copied from another user's stack; could work a job and was mostly functional, with flares still sending him to the ERI started taking several of the pills hes taking and now i could atleast work a job. I still have flare up that send me to ER but mostly im functional.In context ↗ | Mild | |
| January 2026 | fourth COVID infection; heart pain worseWith this infection, the heart pain is getting worse.In context ↗ | Moderate | |
| April 2026 | crashed a few days after a 1.5-2 mile walkwent for a walk 1.5-2 mile walk, few days later, i am having tingling in my feet, internal tremors in my sleep that woke meIn context ↗ | Moderate | |
| May 2026 | after a reinfection made him severe, came back up better than his highs before the infectionI got reinfected- severity felt about the same as the last infection but then I got severe. I am on the up now. But this up is better than my highs prior to this infection.In context ↗ | Mild | |
| September 2026 | more stable by avoiding triggers and watching his thresholdIm more stable now. I am on year 3. What has worked for me is honestly avoiding triggers.In context ↗ | Mild | Pacing and the energy envelope |
| October 2026 | still progressive: daily pain, oxygen desaturations, waking chokingI spend most of my days in pain desaturating oxygen. ... the debilitation keeps progression even though I have slowed it with supplements and medsIn context ↗ | Moderate |
Adverse events
- “I tried about 15mg of sleep gummy of my girlfriends (dispensary) and had a seizure, stroke. Literally think it broke my threshold.” In context ↗ Made symptoms worse
- “my gf sleep cbd gummy started all my worst symptoms. Panic attacks, disassociation, intrusive thoughts, terror, tremors, i almost went in patient psych.” In context ↗ Mood or psychiatric effects
- Metoprolol (Lopressor, Toprol), Propranolol (Inderal)“when i switched the chest pain that i have daily got even worse” In context ↗ Made symptoms worse
- Diphenhydramine (Benadryl)“I think that was one of the first meds i grew intolerant to. I would itch all over strangely” In context ↗ Allergic reaction / anaphylaxis
- Diphenhydramine (Benadryl)“Iv benadryl also makes me wig out.” In context ↗ Mood or psychiatric effects
- Ketotifen (Zaditen)“I use ketotifen and got medication acne and EXTREME IRRITABILITY. I was raging for weeks until it settled down.” In context ↗ Mood or psychiatric effects
- Cromolyn (Gastrocrom, Nalcrom)“Cromolyn liquid gave me heart palpitations and headaches. I put one drop in 8oz of water and started getting heart palpitations.” In context ↗ Heart rhythm problems
- Cromolyn (Gastrocrom, Nalcrom)“I tried cromolyn, did not help gave me migraine INSTANTLY.” In context ↗ Made symptoms worse
- Corticosteroid pulses“I was able to take prednisone but since my long covid i cant take it. I get racing heart and heart palpitations.” In context ↗ Heart rhythm problems
- NAD+ boosters (NMN, nicotinamide riboside, NADH, ATP)“I was having tingling on the left side of my face, and a bounding heart beat/heart palpitations so I stopped.” In context ↗ Heart rhythm problems
- Low-dose naltrexone“I tried 0.01 and had some blurry vision and nausea. Immediately went back down where I feel less symptomatic.” In context ↗ Side effects
- Ibuprofen (Advil, Nurofen, Motrin), Paracetamol / acetaminophen (Tylenol, Panadol)“if i take ibuprofen or tylenol, or any of my daily supplements, i get heart palpitations. My pulse starts climbing fast and quickly” In context ↗ Heart rhythm problems
- Aspirin, Nattokinase“My lc has caused me to get tachycardic from aspirin, and natto” In context ↗ Heart rhythm problems
- Occupational therapy“I just completed OT. It caused me to flare pretty much every session.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHeart symptoms & palpitationsMast cell (MCAS) & allergiesNeuropathy & tinglingPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
Now i have al the shit lol. Mcas, pem, headaches, weird heart beats, pulse, brain fog, u name it.
In context ↗ - Brain fog
Mcas, pem, headaches, weird heart beats, pulse, brain fog, u name it.
In context ↗ - Mast cell (MCAS) & allergies
I’m growing allergic to all the meds that im taking.
In context ↗ - Sleep problems
i have not sleep more than a few hours a night due to the move
In context ↗ - Gut problems
And instead of the back to back BMs, i have chronic constipation.
In context ↗ - Heart symptoms & palpitations
I have had this chest pain where my heart is for years now.
In context ↗ - Neuropathy & tingling
i am having tingling in my feet, internal tremors in my sleep that woke me
In context ↗ - Anxiety & low mood
now my panic attacks and anxiety are trying to return
In context ↗
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