Long COVID
Moderate → relapsedIll 4.5 years before improving or writing
Long COVID with head pressure and brain fog, improved then relapsed after an antibiotic
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4.5 years
- Last post
- Jun 2026
In their words
- Condition: Long COVID
I got Covid on January 18 and after that I got bad head pressure for 3 weeks.
In context ↗ - At worst: Moderate
I haven’t done full laundry in over 3 months. My has comes home from work tired and he has to come and clean the kitchen and living room.
In context ↗ - Now: Relapsed
I took some antibiotics and missed me up again to were the anxiety was as bad as it was when I started the long covid.
In context ↗ - Began after: COVID
I got Covid on January 18
In context ↗
Read from 114 of their posts and comments; links to the 48 this page draws on
- Mar 2022
- May 2022
- Jun 2026
- Jun 2022
- Feb 2022
- Apr 2022
- Apr 2022
- May 2022
- May 2022
- Mar 2022
- May 2022
- Mar 2022
- Mar 2022
- May 2022
- Mar 2022
- Mar 2022
- Apr 2022
- Apr 2022
- Apr 2022
- Apr 2022
- May 2022
- Apr 2022
- May 2022
- May 2022
- May 2022
- May 2022
- May 2022
- May 2022
- May 2022
- May 2022
- May 2022
- May 2022
- May 2022
- Jun 2022
- Jun 2026
- Mar 2022
- May 2022
- Apr 2022
- Apr 2022
- May 2022
- May 2022
- May 2022
- Apr 2022
- May 2022
- May 2022
- Jul 2022
- Jun 2026
- Apr 2022
Summary
Glade 80138 caught COVID in January 2022 and developed long COVID with severe head and eye pressure, brain fog, derealization, dizziness, anxiety and GI issues. Prednisone brought numbness, panic and high blood pressure, and SSRIs made her worse. By July 2022 she felt 80% on good days, but an antibiotic in 2026 brought anxiety back to early levels and she stayed on low-dose clonazepam.
Ask Miruvor AI
What they tried
Also tried
walking· HelpedLDN· Helpednaproxen· Helped · wore offAdvil· Helpedvitamin D· No changelow histamine diet· No changeprednisone· Worseantibiotics· WorseCBD· WorseAtivan· Worsehydroxyzine hcl· WorsePropranolol· Worsevitamin B complex· WorseMeclizine· WorseClaritin· WorseGinkgo· WorseFluvoxamine· Worseturmeric· WorseDHA· Worsemagnesium glycinate· Worsegluten free diet· WorseNAC· WorseAllegra· WorsePepcid· WorseBenadryl· WorseProzac· Worselions mane· Worseniacin flush· WorseZyrtec· WorseKlonopin· Worsemuscle relaxers· Not saidmelatonin· Not saidLisinopril· Not saidDLPA· Not saidvitamins· Not said
Their words about each treatment
- prednisone · Worse
my doctor made me stop the prednisone it was making my face numb
In context ↗ - antibiotics · Worse
I took some antibiotics and missed me up again to were the anxiety was as bad as it was when I started the long covid
In context ↗ - muscle relaxers · Not said
They put me on prednisone steroid 20mg two tablet a day and antibiotics plus muscle relaxers.
In context ↗ - CBD · Worse
I tried CBD only once my first month of long Covid and It freaked me more out instead of calming me.
In context ↗ - Ativan · Worse
I also have Ativan that I was given at the beginning but it gives me bad headaches.
In context ↗ - melatonin · Not said
I used to take melatonin every night but I don’t have to anymore.
In context ↗ - vitamin D · No change
My doctor told me I need to get my vitamin D up but he told me to just take 2,000 mg. I have been doing that for 2 months but it still isn’t going up.
In context ↗ - Lisinopril · Not said
I’m taking Lisinopril 10mg for blood pressure and my doctor says I can’t take the hydroxyzine hcl 25 mg
In context ↗ - hydroxyzine hcl · Worse
I have tried hydroxyzine and it made me super dizzy.
In context ↗ - Propranolol · Worse
I get bad headaches while taking it and the weird thing about it is after I take one it keeps my blood pressure super low for 4 days.
In context ↗ - vitamin B complex · Worse
I also have tried vitamin B complex to help with this feeling but for some reason it makes it worse
In context ↗ - Meclizine · Worse
Doctor prescribe me Meclizine 25mg and it doesn’t help at all. All it does it make me sleepy.
In context ↗ - Claritin · Worse
Claritin was making me depressed. I had been taking it for almost two months and noticed I was so emotional.
In context ↗ - walking · Helped
the only thing that helps for a bit is walking like walking on a trail. It’s the only time I feel somewhat normal.
In context ↗ - Ginkgo · Worse
I started taking Ginkgo 2nd day but for some reason I feel more dizzy and disoriented and it gave me a bad headache.
In context ↗ - Fluvoxamine · Worse
I woke up with my normal morning anxiety attack but 10 times worse.
In context ↗ - turmeric · Worse
I feel when I start turmeric I start to go backwards.
In context ↗ - DHA · Worse
I think some of the vitamins I’m taking my be making my brain fog worse. Like DHA and magnesium glycinate.
In context ↗ - gluten free diet · Worse
now that I started the gluten diet I feel more weak and tried but if I mess up by eating something none gluten it gets worse
In context ↗ - low histamine diet · No change
No diet is working for me low histamine I have even cut out gluten.
In context ↗ - DLPA · Not said
I started it yesterday and I feel like really wired after taking it.
In context ↗ - NAC · Worse
After a week on NAC I was crying like crying. So depressed.
In context ↗ - LDN · Helped
It helps me sleep but every time I try to go up I can’t sleep what so ever and I get a lot worse and depressed.
In context ↗ - Allegra · Worse
soon later I was feeling dizzy like my neuro issues were getting worse
In context ↗ - Pepcid · Worse
I have been taking Pepcid for 2 weeks now and I have noticed when I take it at night I wake up In panic.
In context ↗ - naproxen · Helped
Yes it seems to have lessened the pressure feeling and eye problems but it was short lived. Like it wasn’t enough.
In context ↗ - Advil · Helped
I also feel better when I take Advil.
In context ↗ - vitamins · Not said
I take vitamins, probiotics, diet, h1, h2 blockers.
In context ↗ - Benadryl · Worse
I tried the hydroxyzine but it turns out I’m allergic to it and Benadryl sadly.
In context ↗ - Prozac · Worse
Well I tried Prozac and my anxiety is back and I’m starting to panic. My derealization seems to have gotten worse.
In context ↗ - lions mane · Worse
I tried lions mane for 3 days and I felt like it was making me a bit sad.
In context ↗ - niacin flush · Worse
After the flushing was done my eyes felt super weird and this morning I woke up in a panic attack that I haven’t had in months.
In context ↗ - Zyrtec · Worse
I have tried Claritin and Zyrtec but they make me a bit drowsy.
In context ↗ - Klonopin · Worse
I just started out at .25mg a day and it makes me feel zoned out.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| January 2022 | COVID-19 infectionI got Covid on January 18In context ↗ | Not stated |
| February 2022 | bad reaction to prednisone: anxiety, numbness, high blood pressureThis morning I had to call the doctor cause I was having the worst anxiety attack.In context ↗ | Mild |
| April 2022 | noticing some symptoms easingI also have already seen my symptoms improving a bitIn context ↗ | Mild |
| May 2022 | month 3-4 crash: brain fog and anxiety at their worstI have not seen no improvements. My brain fog is the worst!In context ↗ | Moderate |
| 2022-05-24 | anxiety and sleep better, only derealization and blurry vision leftI’m only left with derealization and blurry vision at times.In context ↗ | Mild |
| 2022-05-25 | crashed after starting ProzacI tried Prozac and my anxiety is back and I’m starting to panic.In context ↗ | Moderate |
| 2022-05-31 | worse after a niacin flushI woke up in a panic attack that I haven’t had in monthsIn context ↗ | Moderate |
| 2022-07-14 | about 80% on good days with no stress and good sleepOn a good day with no stress and good sleep I feel at 80%In context ↗ | Mild |
| June 2026 | floxed by an antibiotic, anxiety back to early long-COVID levelsI took some antibiotics and missed me up again to were the anxiety was as bad as it was when I started the long covid.In context ↗ | Mild |
| 2026-06-26 | still ill four years on, on clonazepam 0.25 mg daily after the floxingI’m on clonazepam and have had long covid 4 years ago and then last month I got floxed by an antibioticIn context ↗ | Mild |
Adverse events
- Corticosteroid pulses“yesterday I started getting leg numbness and face tingling” In context ↗ Side effects
- Corticosteroid pulses“I had to call the doctor cause I was having the worst anxiety attack” In context ↗ Mood or psychiatric effects
- Corticosteroid pulses“It also left me with high blood pressure” In context ↗ Side effects
- Corticosteroid pulses“I still can’t sleep through the night” In context ↗ Insomnia from treatment
- Corticosteroid pulses“I took my first dose and my face went numb” In context ↗ Side effects
- Lisinopril (Zestril)“after I take one it keeps my blood pressure super low for 4 days” In context ↗ Low blood pressure or fainting
- Lisinopril (Zestril)“I get bad headaches while taking it” In context ↗ Made symptoms worse
- Ginkgo biloba“I feel more dizzy and disoriented and it gave me a bad headache” In context ↗ Made symptoms worse
- Vitamin B complex“I also have tried vitamin B complex to help with this feeling but for some reason it makes it worse” In context ↗ Made symptoms worse
- Meclizine (Bonine, Antivert)“it doesn’t help at all. All it does it make me sleepy” In context ↗ Side effects
- Fluvoxamine (Luvox)“I have been having the worst nausea and am definitely about to throw up from the Fluvoxamine” In context ↗ Gut side effects
- Fluvoxamine (Luvox)“I can’t stop shaking it’s almost like I’m going through withdrawal” In context ↗ Withdrawal problems
- CBD (cannabidiol)“It freaked me more out instead of calming me” In context ↗ Made symptoms worse
- Turmeric / curcumin“I feel when I start turmeric I start to go backwards” In context ↗ Made symptoms worse
- Omega-3 and fish oil“I think some of the vitamins I’m taking my be making my brain fog worse. Like DHA and magnesium glycinate” In context ↗ Made symptoms worse
- Omega-3 and fish oil, Magnesium“I think some of the vitamins I’m taking my be making my brain fog worse. Like DHA and magnesium glycinate” In context ↗ Made symptoms worse
- Hydroxyzine (Atarax, Vistaril)“I have tried hydroxyzine and it made me super dizzy” In context ↗ Side effects
- Hydroxyzine (Atarax, Vistaril), Diphenhydramine (Benadryl)“it turns out I’m allergic to it and Benadryl sadly” In context ↗ Allergic reaction / anaphylaxis
- NAC (N-acetylcysteine)“After a week on NAC I was crying like crying. So depressed.” In context ↗ Mood or psychiatric effects
- Low-dose naltrexone“every time I try to go up I can’t sleep what so ever” In context ↗ Insomnia from treatment
- Low-dose naltrexone“I get a lot worse and depressed” In context ↗ Made symptoms worse
- Loratadine (Claritin)“Every time I take Claritin I feel depressed” In context ↗ Mood or psychiatric effects
- Famotidine (Pepcid)“I also tried Pepcid and I felt worse” In context ↗ Made symptoms worse
- Famotidine (Pepcid)“when I take it at night I wake up In panic” In context ↗ Mood or psychiatric effects
- Fexofenadine (Allegra)“soon after taking it my neuro issue get a bit worse like the dizziness” In context ↗ Made symptoms worse
- Fluoxetine (Prozac)“I tried Prozac and my anxiety is back and I’m starting to panic. My derealization seems to have gotten worse” In context ↗ Made symptoms worse
- Fluoxetine (Prozac)“my GI issues are back with a vengeance” In context ↗ Gut side effects
- AHCC and medicinal mushrooms (reishi, shiitake, maitake)“I tried lions mane for 3 days and I felt like it was making me a bit sad.” In context ↗ Mood or psychiatric effects
- Niacin (vitamin B3)“my vision feels weird and my anxiety is up” In context ↗ Made symptoms worse
- Lorazepam (Ativan)“I also have Ativan that I was given at the beginning but it gives me bad headaches” In context ↗ Side effects
- Naproxen (Aleve)“they make me a bit dizzy” In context ↗ Side effects
- Clonazepam (Klonopin)“I just started out at .25mg a day and it makes me feel zoned out.” In context ↗ Side effects
- Antibiotics (unspecified)“last month I got floxed by an antibiotic ... the anxiety was as bad as it was when I started the long covid” Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogFlu-like symptomsHeadaches & migraineNeuropathy & tinglingPOTS & dysautonomiaSleep problems
Their words about their symptoms
- Brain fog
My brain feels really foggy
In context ↗ - POTS & dysautonomia
I been dizzy 24/7
In context ↗ - Sleep problems
I still can’t sleep through the night
In context ↗ - Headaches & migraine
Covid has left me with BAD anxiety and headaches
In context ↗ - Anxiety & low mood
the anxiety was as bad as it was when I started the long covid
In context ↗ - Neuropathy & tingling
I started getting leg numbness and face tingling
In context ↗ - Flu-like symptoms
I had swollen lymph nodes on my neck and face
In context ↗