Neurological long COVID, 100% disabled and off work, no relief from many medications
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 22 months
- Last post
- Aug 2024
In their words
- Condition: Long COVID
I have Neurological Long Covid.
In context ↗ - At worst: Moderate
Haven’t been able to work in over a year ... I’m not able to do much
- Now: No benefit
I am 100% disabled.
In context ↗ - Began after: COVID
My long Covid caused double vision and a bunch of neuro symptoms.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
An RN in a busy hospital before COVID, they developed neurological long COVID with double vision, gastroparesis, cognitive problems and constant nerve, joint and skin pain. Seventeen months in, they had not worked for over a year; many medications brought no relief, and by August 2024 a long COVID clinic had nothing for them and they were 100% disabled. Medical marijuana gave some pain and brain-fog relief.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- vision correction by a neuro-ophthalmologist · Helped
You need to see a Neuro Opthamologist. ... They were able to correct my vision so I can function.
In context ↗ - medications that were supposed to help with the nerve, joint and skin pain · No change
I’ve tried so many medications that were supposed to help with the nerve, joint and skin pain. None were effective for me.
In context ↗ - medical marijuana · Helped
Medical marijuana saved my life. ... This is the only thing that has touched the pain I have.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | neurological long COVID onsetMy long Covid caused double vision and a bunch of neuro symptoms.In context ↗ | Not stated |
| 2023-10-30 | unable to work for over a yearBefore Covid, I was a RN in a busy hospital. Haven’t been able to work in over a year.In context ↗ | Moderate |
| 2024-03-09 | some pain and brain-fog relief from medical marijuanaI’m in constant pain as well. I’m 17 months in.In context ↗ | Moderate |
| 2024-08-23 | still 100% disabled; long COVID clinic had nothing for themI have Neurological Long Covid. I am 100% disabled.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Vision problems
My long Covid caused double vision and a bunch of neuro symptoms.
In context ↗ - Brain fog
it cuts through the brain fog
In context ↗ - Gut problems
I have double vision, gastroparesis, cognitive and executive function issues
In context ↗ - Pain & fibromyalgia
I’m in constant pain as well.
In context ↗