Long COVID with brain fog, pain and fatigue, much better after time and vaccination
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 18 months
- Last post
- Feb 2022
In their words
- Condition: Long COVID
1yr 4mo LH covid here.
In context ↗ - At worst: Mild
I can finally hold a conversation with friends but it's never academic or heady, just casual banter.
In context ↗ - Now: Much better
Still sick, still have it better from when I made this original post. 22mo.
In context ↗ - Began after: COVID
Infection history: 1st, Jan 2020.
In context ↗
Read from 41 of their posts and comments; links to the 22 this page draws on
Summary
Comet 84011 caught COVID-19 in January 2020 and was left with long COVID: brain fog, pain, fatigue, tinnitus, lost smell, muted taste and POTS-like symptoms; physical activity started coming back at about nine months. A UK-variant reinfection in November 2020 brought symptoms back for three days. He credits time and COVID vaccination; by June 2021 he was at 90% of himself, though flare-ups, phantom smells and memory gaps remained.
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What they tried
What they credit
Their words about each treatment
- GF · Helped
I've been GF for 10yrs because it whacks me hard.
In context ↗ - Vitamin D · Helped
I noticed an improvement after adding D to my morning medication.
In context ↗ - Lunesta · Helped
Lunesta 1mg has worked for me until this week, will consult with doc to increase to 3mg
In context ↗ - Ambien · Helped
Vitamin D helped. Ambien helps.
In context ↗ - Xanax · Worse
Xanax is murder and a guaranteed flare up
In context ↗ - Pfizer shot 2 · Helped a lot
Got the second shot a week ago, day three just woke up and IT was gone.
In context ↗ - time · Helped a lot
it's fucking time that fixes this, I am 16mo and so much better.
In context ↗ - Advil · Helped
Advil sorta helped while it's going on.
In context ↗
Approaches: Supplements · Vaccination
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| January 2020 | first COVID-19 infection; loss of smell and tasteInfection history: 1st, Jan 2020.In context ↗ | |
| about 9 months in (2020) | fatigue cleared and physical activity started coming backPhysical activity started coming back at 9moIn context ↗ | Time and spontaneous remission |
| November 2020 | COVID reinfection (UK variant), all symptoms back for a few daysIt felt like the same damn thing, all the symptoms came rushing back, but it was only for 3 days.In context ↗ | |
| June 2021 | back to about 90% of his former self after 1.5 yearsI am at 90% of me after 1.5yrs of sick.In context ↗ | COVID vaccination as treatment |
| September 2021 | crashed for a week after three cidersI had three ciders across 3 days, and I lost a week to it.In context ↗ | |
| February 2022 | pretty good after Moderna booster; phantom smells twice a weekPretty good after the moderna booster. ... I get phantoms 2x a week.In context ↗ | COVID vaccination as treatment |
Adverse events
- Alprazolam (Xanax)“Xanax is murder and a guaranteed flare up.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“Got a little bit better, and then I lost ground. But overall a little bit better” In context ↗ Made symptoms worse
- COVID vaccination as treatment“When I got my shots I felt like ass for 2 days” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I still get flare-ups that last a week if I am not careful
In context ↗ - Brain fog
The brain fog has passed but a lot of my occupational knowledge is gone.
In context ↗ - POTS & dysautonomia
POTS like symptoms but some LC people exit the daily POTS life. I have .. now its just a flareup 3-5 a week.
In context ↗ - Sleep problems
Need sleep aides to stay asleep through the night.
In context ↗ - Pain & fibromyalgia
my random pains are gone
In context ↗ - Tinnitus
Tinnitus stayed fatigue is gone.
In context ↗ - Loss of smell or taste
I do have phantom smells, this week, toe jam.
In context ↗ - Anxiety & low mood
suicidal thoughts that randomly pop up during the day unprovoked
In context ↗ - Gut problems
GI, mood swings and then back to regular covid fatigue.
In context ↗
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