ME/CFS
Moderate → no benefit
ME/CFS with intense GERD and PEM: upright after meals, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
This has been brutal for my ability to rest, and causing PEM.
In context ↗ - At worst: Moderate
Since my recent crash, I’ve been pushing my body hard just to finish those 3 hours after breakfast. Then I nap.
In context ↗ - Now: No benefit
Since my recent crash, I’ve been pushing my body hard just to finish those 3 hours after breakfast. Then I nap.
In context ↗
Summary
Someone with ME/CFS and EDS said intense GERD forced them to stay upright three hours after eating or drinking, which they said caused PEM. They timed daytime rest around breakfast, often missing meals, and struggled to meet nutritional needs on a restricted diet. Since a recent crash they had pushed hard just to finish those three upright hours. They had avoided PPIs over concerns about delayed gastric emptying.
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Symptoms mentioned
Gut problemsMast cell (MCAS) & allergiesNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
This has been brutal for my ability to rest, and causing PEM.
In context ↗ - Gut problems
Due to my intense GERD, I need to be awake and upright 3 hours
In context ↗ - Pain & fibromyalgia
I immediately get nerve and joint pain from my EDS
In context ↗ - Mast cell (MCAS) & allergies
I have allergies to stone fruit and it gives me a reaction
In context ↗