Long COVID with hair loss and nerve problems, now near normal; booster or time may be why
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 8 months
- Last post
- Feb 2022
In their words
- Condition: Long COVID
Started getting long haul symptoms in July, lost over half my hair
In context ↗ - At worst: Moderate
I saw hematologists, gi specialists, pcp, bloodwork, CTs, MRIs at least once a month because of all of this. It was a nightmare and I was suicidal.
In context ↗ - Now: Near normal
I got my booster in December and it was like magically everything stopped. I get small flare ups but it's so mild compared to what I was going through
In context ↗ - Began after: COVID
I was hospitalized with Covid in April 2021 before I was able to get vaccinated.
In context ↗
Summary
They were hospitalised with Covid in April 2021 and developed long-Covid symptoms that July: losing over half their hair, leg cramping, gut, nerve and chest problems, and suicidal thoughts, with monthly specialist visits. Two vaccine doses after infection made them sicker; a booster in December 2021 stopped everything. Only mild flare-ups lasting a couple of days remained, and they could not tell if the booster or time was responsible.
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What they tried
What they credit
Their words about each treatment
- COVID vaccine and booster · Helped a lot
I got my booster in December and it was like magically everything stopped.
In context ↗
Approaches: Vaccination
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| April 2021 | Hospitalised with CovidI was hospitalized with Covid in April 2021 before I was able to get vaccinated.In context ↗ | |
| July 2021 | Long-Covid symptoms began: hair loss, leg cramping, GI, nerve and chest problems; suicidalStarted getting long haul symptoms in July, lost over half my hairIn context ↗ | |
| December 2021 | Booster shot stopped everythingI got my booster in December and it was like magically everything stopped.In context ↗ | COVID vaccination as treatment |
| 2022-02-14 | Left with only small, mild flare-upsI get small flare ups but it's so mild compared to what I was going through and only lasts a couple of days.In context ↗ |
Adverse events
- COVID vaccination as treatment“I felt like it definitely set me back” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I got the first and second dose like a month after I had Covid and got really sick after both doses.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Hair loss
lost over half my hair
In context ↗ - Pain & fibromyalgia
had leg cramping
In context ↗
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