Stuck in bed with long COVID, much better after gluten-free diet and antidepressant switch
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Dec 2023
In their words
- Condition: Long COVID
Then with long haulers, I fell back into the state you are describing
In context ↗ - At worst: Severe
this is what helped me get out of a bed from what felt EXACTLY like what you are describing
In context ↗ - Now: Much better
It gives me enough clarity and energy to do the basics and got me out of bed and started back into life.
In context ↗ - Began after: COVID
I believe covid triggered celiac in my daughter and I ... Then with long haulers, I fell back into the state you are describing
Summary
They spent years on the wrong antidepressant and were stuck in bed; switching antidepressants, an ADHD diagnosis and Adderall gave enough clarity to get up and back into life. They believe COVID triggered celiac disease in them and their daughter, and a positive celiac test plus a gluten-free diet made life much better - they said they got their life back. After long haulers they fell back into the same state and raised their Cymbalta dose.
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What they tried
What they credit
Also tried
Their words about each treatment
- antidepressants / Cymbalta · Helped
I had to change antidepressants ... I was on the wrong one for so many years and I feel resentful for the years lost.
In context ↗ - Adderall · Helped a lot
it has changed my life. It gives me enough clarity and energy to do the basics and got me out of bed and started back into life.
In context ↗ - gluten-free diet · Helped a lot
my life has become so much better since I was diagnosed and went gluten-free. It sucks in terms of food, but I got my life back.
In context ↗
Approaches: Diet · Stimulants
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | in bed with brain fog, unable to focus enough to workthis is what helped me get out of a bed from what felt EXACTLY like what you are describing.In context ↗ | Severe | |
| — | changed antidepressants, ADHD diagnosis, then Adderall got them out of bedIt gives me enough clarity and energy to do the basics and got me out of bed and started back into life.In context ↗ | Mild | Amphetamine salts (Adderall) |
| 2023-11 | diagnosed with celiac disease and went gluten-freemy life has become so much better since I was diagnosed and went gluten-free ... I got my life backIn context ↗ | Mild | Gluten-free diet |
| 2023-12-05 | fell back into the long-COVID state after long haulers and raised their Cymbalta doseThen with long haulers, I fell back into the state you are describingIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Brain fog
I had to change antidepressants and I got an ADHD diagnosis due to the brain fog.
In context ↗ - Anxiety & low mood
I had to change antidepressants
In context ↗ - Pain & fibromyalgia
increased my dose of Cymbalta which has medicine for joint pain and other things that help my inflammation
In context ↗
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