Long COVID
Somewhat better
Long COVID with gut and light sensitivity, somewhat better with curcuma and riboflavin
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Oct 2024
In their words
- Condition: Long COVID
After having received my gene results I am no longer astonished that I got LC.
In context ↗ - Now: Somewhat better
Curcuma, high dose Riboflavin and Cetirizin twice daily help me amongst others with headache and light sensitivity ... But at least I can leave my dark room for a few hours daily.
In context ↗ - Began after: COVID
After having received my gene results I am no longer astonished that I got LC.
In context ↗
Read from 12 of their posts and comments; links to the 10 this page draws on
Summary
They describe long COVID with gut problems, headaches, light and noise sensitivity, weakness and sleep difficulty. Probiotics worsened their gut, and L. plantarum 299v was pricey and did nothing. Huperzine A caused side effects and a crash, and low-dose naltrexone at 0.01 mg brought migraine and neck pain. By late 2024 magnesium and calcium helped one symptom, now only to a lesser extent during a crash, and curcuma, riboflavin and cetirizine help them leave their dark room for hours daily.
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What they tried
Also tried
red light therapy· HelpedL-Tyrosine· HelpedMagnesium· HelpedCalcium· HelpedLithium Orotate· HelpedCurcuma· HelpedRiboflavin· HelpedCetirizin· HelpedL. plantarum 299v· No changePhosphatidylcholine· No changeprobiotics· WorseResveratrol· WorseApigenin· Worsegreen light therapy· WorseHuperzine A· Much worseLDN· Not saidcarragelose spray· Not saidPovidon-Iod· Not saidbreathing meditation· Not saidvagus nerve exercises· Not saidTENS machine· Not said
Their words about each treatment
- red light therapy · Helped
During red and NIR my watch shows high stress. But it seems to help a bit against pain and relaxes my muscles.
In context ↗ - probiotics · Worse
It made my gut issues so much worse.
In context ↗ - L. plantarum 299v · No change
The only thing I could tolerate was L. plantarum 299v. But it was quite pricey and it didn't seem to do anything so I stopped taking it after 2 months.
In context ↗ - L-Tyrosine · Helped
L-Tyrosine would be the precursor of Dopamine. It helps me to feel a little less crappy.
In context ↗ - Resveratrol · Worse
Resveratrol made it definitively worse.
In context ↗ - Phosphatidylcholine · No change
Yes, I have tried Phosphatidylcholine but unfortunatley it didn't do anything for me.
In context ↗ - Huperzine A · Much worse
Went up to 20 mcg on day 3 and felt terrible (typical side effects). So I stopped immediately and crashed.
In context ↗ - LDN · Not said
I am very very slowly building up the LDN since a few weeks now, because it gave me a terrible migraine and neck pain on 0.01mg.
In context ↗ - carragelose spray · Not said
I use carragelose sprays before and after contact
In context ↗ - Povidon-Iod · Not said
Povidon-Iod, if I have a feeling that I could have been exposed to something.
In context ↗ - green light therapy · Worse
Tried it a few weeks ago for a few days. It seemed to help a bit with the inflammation but it gave me constant headache and worsened light sensitivity.
In context ↗ - Magnesium · Helped
I take high dose Magnesium and had to add in Calcium too. Now I only get this to a way lesser extent while in a crash.
In context ↗ - Lithium Orotate · Helped
LDN and Lithium Orotate act on the CNS. Low Dose Lithium helps me a bit with hyperacusis.
In context ↗ - breathing meditation · Not said
I do breathing meditation twice daily
In context ↗ - vagus nerve exercises · Not said
I do breathing meditation twice daily and "exercises" for the vagus nerve. Because I can not tolerate TENS or similar.
In context ↗ - Curcuma · Helped
Curcuma, high dose Riboflavin and Cetirizin twice daily help me amongst others with headache and light sensitivity
In context ↗ - TENS machine · Not said
I can not tolerate TENS or similar.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | long COVID | Not stated | |
| 2024-07-29 | Huperzine A 20 mcg caused side effects and a crashWent up to 20 mcg on day 3 and felt terrible (typical side effects). So I stopped immediately and crashed.In context ↗ | Not stated | |
| 2024-08-25 | Low-dose naltrexone 0.01 mg caused migraine and neck painit gave me a terrible migraine and neck pain on 0.01mg.In context ↗ | Not stated | Low-dose naltrexone |
| 2024-10-29 | tremors less severe, only in crashesNow I only get this to a way lesser extent while in a crash.In context ↗ | Not stated | |
| 2024-10-30 | can leave dark room for a few hours dailyBut at least I can leave my dark room for a few hours daily.In context ↗ | Moderate |
Adverse events
- Probiotics and fermented foods“It made my gut issues so much worse.” In context ↗ Gut side effects
- “I tried several products claming to be for people with histamine problems and got even worse.” In context ↗ Made symptoms worse
- Resveratrol“Resveratrol made it definitively worse.” In context ↗ Made symptoms worse
- Apigenin“Apigenin too.” In context ↗ Made symptoms worse
- Huperzine A“Went up to 20 mcg on day 3 and felt terrible (typical side effects). So I stopped immediately and crashed.” In context ↗ Side effects
- Low-dose naltrexone“it gave me a terrible migraine and neck pain on 0.01mg.” In context ↗ Side effects
- Red and near-infrared light therapy, Red light, PEMF or microcurrent (unspecified)“it gave me constant headache and worsened light sensitivity.” In context ↗ Side effects
- Red and near-infrared light therapy“Can't tolerate it on the head for to long because otherwise it gives me headaches too.” In context ↗ Side effects
- TENS machine“I can not tolerate TENS or similar.” In context ↗ Side effects
Symptoms mentioned
Gut problemsHeadaches & migraineLight & noise sensitivityMuscle weaknessPain & fibromyalgiaSleep problems
Their words about their symptoms
- Gut problems
It made my gut issues so much worse.
In context ↗ - Headaches & migraine
it gave me a terrible migraine and neck pain on 0.01mg.
In context ↗ - Light & noise sensitivity
worsened light sensitivity.
In context ↗ - Muscle weakness
I'm to weak to open and close the windows myself.
In context ↗ - Sleep problems
helps me fall asleep a bit easyer.
In context ↗ - Pain & fibromyalgia
it seems to help a bit against pain and relaxes my muscles.
In context ↗