Long COVID
Mild → somewhat betterIll 9 months before improving or writing
Long COVID neuropathy with crashes, some improvement with dilute bourbon and THCa flower
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 9 months
- Last post
- Mar 2025
In their words
- Condition: Long COVID
I had Covid, Covid, Covid, and then developed long covid
In context ↗ - At worst: Mild
I went shopping at Academy and Lowes ... I spent the next 6 hours in bed
In context ↗ - Now: Somewhat better
My legs are almost normal now, and my skin has calmed down. ... My long covid is peripheral neuropathy.
- Began after: COVID
Starting in June, I had Covid, Covid, Covid, and then developed long covid, then covid on top of long covid, and now I'm just back to long covid.
In context ↗
Read from 14 of their posts and comments; links to the 11 this page draws on
Summary
Cedar 38304 developed long COVID in June 2024 after three verified COVID infections, with a fourth later on. They described peripheral neuropathy with tingling, chills, aching legs and muscle pain, and a post-exertional crash after errands. Prescriptions for neuropathy did little; paxlovid made them feel poisoned, while dilute bourbon treated their tremor and THCa flower eased nerve pain and left their legs almost normal. By February 2025 they still described long COVID as peripheral neuropathy.
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What they tried
Also tried
walking and extensive stretching· Helpedprimidone· HelpedTHCa flower· Helpedalcohol (bourbon)· Helpeddouble balloon enteroscopy· HelpedTylenol· No changeAdvil· No changehydroxazine· No changegiven up soda and beer· No changepaxlovid· Worseiron· Worsetwo units of blood· Not saidOndanestron (zofram)· Not saidbeta blocker· Not saidlexipro· Not said
Their words about each treatment
- Tylenol · No change
Tylenol and advil have never helped the foot aches.
In context ↗ - Advil · No change
no advil or tylenol ever touches the muscle/ nerve pains
In context ↗ - walking and extensive stretching · Helped
The best thing I've found is walking and extensive stretching of my leg and foot muscles.
In context ↗ - paxlovid · Worse
I felt like I had been poisoned. ... It was 2 days of vomiting and feeling way worse than I ever did just from covid.
In context ↗ - hydroxazine · No change
They even gave me an anti itch medication, hydroxazine I think. Nothing has touched it.
In context ↗ - primidone · Helped
primidone has my hands as steady as a surgeons
In context ↗ - THCa flower · Helped
I figured out that THCa flower really seemed to help. My legs are almost normal now, and my skin has calmed down.
In context ↗ - given up soda and beer · No change
I've given up soda and beer, but I still burp and fart all day.
In context ↗ - iron · Worse
They gave me iron and blood yesterday ... My gut got torn up from the iron pills
- two units of blood · Not said
my hematologist after my latest blood results wanted to give me two units of blood
In context ↗ - Ondanestron (zofram) · Not said
My gut got torn up from the iron pills, so I just have a standing prescription for it.
In context ↗ - beta blocker · Not said
I also take a beta blocker
In context ↗ - lexipro · Not said
I take lexipro, and primidone (beta blocker for the tremors), but nothing else helps me at all.
In context ↗ - alcohol (bourbon) · Helped
It treats my essential tremor, and yeah, I usually feel better when I have some.
In context ↗ - double balloon enteroscopy · Helped
Just had a double balloon enteroscopy procedue a couple weeks ago to lazer the leaks. Seems to be working
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| June 2024 | repeated COVID infections, then long COVIDStarting in June, I had Covid, Covid, Covid, and then developed long covid, then covid on top of long covid, and now I'm just back to long covid.In context ↗ | Not stated |
| 2024-12-14 | crashed after shopping and errands, six hours in bed in painI got home and about two hours later I felt like I had been hit by a truck. I spent the next 6 hours in bed just trying to massage the aching muscles.In context ↗ | Mild |
| 2024-12-14 | legs almost normal and skin calmed after THCa flowerAlso, I figured out that THCa flower really seemed to help. My legs are almost normal now, and my skin has calmed down.In context ↗ | Mild |
| 2024-12-17 | trapped in hospital bed by fall alarm, legs ached badly without walking and stretchingThe dang hospital turned on the bed alarm so I was trapped in bed all day and overnight. My legs were aching so bad because I couldn't do my usualy walking and stretching to help them.In context ↗ | Mild |
| 2025-02-23 | still living with long COVID peripheral neuropathyMy long covid is peripheral neuropathy. It's primarily in my toes but also manifests in chills and pins and needles all over, and even goes up the legs a bit sometimes.In context ↗ | Mild |
Adverse events
- Iron infusion / ferritin repletion“My gut got torn up from the iron pills, so I just have a standing prescription for it.” In context ↗ Gut side effects
- Paxlovid / nirmatrelvir“I felt like I had been poisoned. ... It was 2 days of vomiting and feeling way worse than I ever did just from covid.” In context ↗ Herx / die-off reaction
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
My skin tingles, I'm cold in very warm rooms, and my muscles just ache all the way through.
In context ↗ - Pain & fibromyalgia
my long covid also includes join pain in my feet and legs. It's in the sensory nerves.
In context ↗ - Post-exertional malaise
I got home and about two hours later I felt like I had been hit by a truck.
In context ↗ - Gut problems
I have a ton of farts, but mostly no smell to them. I've given up soda and beer, but I still burp and fart all day.
In context ↗