Mostly in bed with long COVID, now close to normal after beta blockers and diet
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Apr 2026
In their words
- Condition: Long COVID
I developed long COVID in October 2021.
In context ↗ - At worst: Severe
I could only walk short distances before becoming severely winded and dizzy ... I spent most of 2022 in bed
- Now: Near normal
I can walk five miles without crashing due to PEM ... I would estimate that I am about 90–95% recovered.
In context ↗ - Began after: COVID
I developed long COVID in October 2021.
In context ↗
Read from 17 of their posts and comments; links to the 10 this page draws on
Summary
Moon 63020 developed long COVID in October 2021 with breathlessness, cough, brain fog and tremors, quitting work in 2022 and spending most of that year in bed. Beta blockers cut full-body tremors to the hands; a late-2023 stomach virus brought a large improvement. An anti-inflammatory diet and whey protein later helped breathing and energy, and they have had no PEM since October 2025. A May 2025 bout of bronchitis and typhoid fever left lingering throat sensitivity; by January 2026 they rated themselves 90-95% recovered, walking five miles without crashing.
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What they tried
What they credit
Also tried
Their words about each treatment
- walking to build up stamina (half a mile, increasing) · Worse
Started with half a mile and tried increasing with time. Progress was incredibly slow and I kept crashing for days sometimes weeks after.
In context ↗ - propranolol · Helped
He prescribed propranolol which is a beta blocker and it helped to settle the shaking.
In context ↗ - golden milk (haldi doodh) · Helped
Drinking golden milk (haldi doodh) gave me the first real signs of improvement.
In context ↗ - learning to draw / Drawabox program · Helped
I never got past lesson one, because after completing it, it felt like someone had turned the lights back on in my brain.
In context ↗ - pacing / watching where energy goes · Helped
So when I learned what PEM was it became clear I needed to lower my expectations and chill out.
In context ↗ - anti-inflammatory diet · Helped
I wish I had been put on an anti-inflammatory diet sooner. It significantly reduced my breathing issues to the point where they are now minimal or unnoticeable.
In context ↗ - antibiotics · Not said
was placed on an anti-inflammatory diet, antibiotics, supplements to support my immune system
In context ↗ - Super C (vitamin C, D3, and zinc) · Helped
I started taking Super C which has Vitamin C, D3, and Zinc. I have not stopped taking it and it seems to be working for me because I haven't gotten sick since.
In context ↗ - steroid medications · Not said
My cholesterol use to spike when I was still on the steroid medications.
In context ↗ - whey protein (Body Fortress Whey Protein) · Helped a lot
Around October 2025, I also started increasing my protein intake, including whey protein. This had a dramatic effect on my energy levels and helped bring them back to normal.
In context ↗ - training AI · Helped
I also started training AI. With time the projects started getting more difficult and that kinda helped with giving my brain the workout it needed.
In context ↗ - magnesium glycinate · Not said
I currently take magnesium glycinate, vitamin C, and L-theanine.
In context ↗ - emergency inhaler · Not said
No meds although I do have an emergency inhaler just incase.
In context ↗ - air purifier, heater, and humidifier · Not said
So I got an air purifier, heater, and a humidifier in order to be able to control my environment to keep my breathing as stable as possible.
In context ↗ - staying in a city with cleaner and drier air · Helped
The most drastic change happened when I stayed in a city that has cleaner and drier air than my hometown
In context ↗ - creatine · Helped
Helped with my memory and clearing up my head. I take 5g daily.
In context ↗
Approaches: Diet · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| October 2021 | Long COVID onset; kept working five months as symptoms worsenedI developed long COVID in October 2021.In context ↗ | Mild | |
| 2022 | Quit work; in bed most of the yearI spent most of 2022 in bed.In context ↗ | Severe | |
| 2023 | Full-body tremors reduced to the handsI went from full-body tremors to just my hands within a yearIn context ↗ | Moderate | Propranolol (Inderal) |
| November 2023 | Stomach virus followed by a large improvement in breathing, fog and energyI noticed a huge improvement in my symptoms.In context ↗ | Moderate | |
| May 2025 | Became sick again: acute bronchitis and typhoid fever, then throat sensitivityIn May 2025, when I was about 80% recovered, I became sick again.In context ↗ | Moderate | |
| October 2025 | PEM stopped after anti-inflammatory diet and higher protein intakeI have not dealt with PEM symptoms since October 2025.In context ↗ | Near normal | |
| January 2026 | Walking five miles without a crash; about 90-95% recoveredToday, I can walk five miles without crashing due to PEM.In context ↗ | Near normal |
Adverse events
- Graded rehab and self-made programmes“Progress was incredibly slow and I kept crashing for days sometimes weeks after.” In context ↗ Made symptoms worse
- Corticosteroid pulses“My cholesterol use to spike when I was still on the steroid medications.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I did have to deal with PEM but I did not learn what it was until 2024.
In context ↗ - Brain fog
Brain fog was another major issue.
In context ↗ - Breathlessness
Breathing became extremely difficult and exhausting.
In context ↗ - Heart symptoms & palpitations
I developed tremors, tachycardia, and extreme sensitivity to smells
In context ↗ - POTS & dysautonomia
I could only walk short distances before becoming severely winded and dizzy.
In context ↗ - Temperature regulation
I also lost the ability to regulate temperature.
In context ↗ - Mast cell (MCAS) & allergies
extreme sensitivity to smells, along with respiratory allergies
In context ↗ - Sleep problems
spent most of my first year asleep
In context ↗
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