Long COVID
Severe → recoveredIll 9 months before improving or writing
Almost bedridden with long COVID, now back to normal after raw-food protocol
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 9 months
- Last post
- May 2024
In their words
- Condition: Long COVID
I had Long Covid for 9 months last year
In context ↗ - At worst: Severe
I had a lot of breathing issues and was almost bedridden
In context ↗ - Now: Recovered
I then fully recovered with the Dr Brooke Goldner protocol and got it twice since - each time not as bad and recovered a lot faster
In context ↗ - Began after: COVID
Since January 2022.
Read from 59 of their posts and comments; links to the 27 this page draws on
Summary
In 1988 she got CFS after glandular fever, was bedridden for two years, then worked a desk job with PEM for two decades until a plant-based diet in 2012. Long COVID from January 2022 left her almost bedridden with breathing problems; supplements, antihistamines and later Dr Brooke Goldner's raw-food protocol brought her back to normal within weeks. Later COVID infections resolved normally.
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What they tried
What they credit
Also tried
low fat / zero fat diet· Helped a lotnaturopath in QLD· Helped a lotNAC (N Acetyl Cysteine)· Helped a lotvitamin D· HelpedPulmicort (asthma puffer)· Helpedlow dose aspirin· Helpediron supplement· Helpedgentle resistance exercises in bed· Helpedelectrolytes, coconut water and salt tablets· Helpedelectrolytes, coconut water and salt tablets· Helpedginger· Helpedprescribed vitamin mix containing B6· Much worsevitamin C· Not saidzinc· Not saidQuercetin· Not saidcold and flu tablets· Not saidniacin· Not saidnaturopath herbal medicine formula· Not saidturmeric capsules· Not saidGez Medinger's protocol· Not said
Their words about each treatment
- prescribed vitamin mix containing B6 · Much worse
Apparently I was taking a years worth of B6 per day.
In context ↗ - plant based diet · Helped a lot
That was until 2012 when I went on a plant based diet. And back to normal.
In context ↗ - B12 supplements · Helped
I found that when I had CFS years ago that taking B12 really helped me recover..
In context ↗ - low fat / zero fat diet · Helped a lot
I cut out all fat and the neuropathy just went away very quickly.
In context ↗ - vitamin D · Helped
I was told by my natropath to increase vitamin D to 5000 mg a day for a week. I did it for about 3 weeks and that also helped.
In context ↗ - vitamin C · Not said
Vitamin C 1000mg ( some suggest more) and zinc 30dmg.
In context ↗ - naturopath in QLD · Helped a lot
There is a practitioner in QLD who really helped me. I was 2 months in with no improvement. Over the next 2 months she got me from begging bed ridden to back at full time
In context ↗ - NAC (N Acetyl Cysteine) · Helped a lot
My natropath perscibed me NAC and I felt a great deal of improvement with it.
In context ↗ - Pulmicort (asthma puffer) · Helped
I also was taking pulmacort (asthma medication) which also seemed to help with my breathing issues.
In context ↗ - Quercetin · Not said
I was taking querctin which is a natural antihistamine.
In context ↗ - cold and flu tablets · Not said
although I was also taking cold and flu tablets at the same time
In context ↗ - antihistamines (Claritin, then Zyrtec) · Helped a lot
it did make a world of difference
In context ↗ - low dose aspirin · Helped
I have just started taking a low dose aspirin each day.
In context ↗ - niacin · Not said
I also took niacin. To be honest - I'm not that sure how much of a difference the niacin made.
In context ↗ - iron supplement · Helped
started supplementing a little with iron and it seemed to be helping
In context ↗ - naturopath herbal medicine formula · Not said
I'm not sure how much of a difference it made as I stated a few things at the send time.
In context ↗ - turmeric capsules · Not said
Although I was too tired so just bought some pre made.
In context ↗ - resting more seriously / pacing · Helped
I spent time researching what to do better and took the while concept of resting more seriously.
In context ↗ - Gez Medinger's protocol · Not said
watched the Ged Medinger video on How to Avoid Long Covid and basically followed his protocol (in addition to most of the above)
In context ↗ - gentle resistance exercises in bed · Helped
I've been using it in bed for a few minutes every couple of days. I really enjoy it and think it's beneficial.
In context ↗ - Dr Brooke Goldner protocol (Hypernourishing smoothies) · Helped a lot
Once I tried her protocol I felt 100% better within 3 to 4 weeks.
In context ↗ - electrolytes, coconut water and salt tablets · Helped
Electrolytes really helped me with these symptoms. Coconut water was big for me for a while.
In context ↗ - ginger · Helped
I just started taking ginger a few days ago. It seems really good.
In context ↗
Approaches: H1 antihistamines · Diet · Pacing · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 1988 | CFS after glandular fever; bedridden two years, sleeping up to 20 hours a dayIn 1988 I had CFS after getting glandular fever. I was 2 years completely bed ridden with up to 20 hours sleep a day.In context ↗ |
| early 1990s | slowly recovered enough to work a desk job, but PEM continued for yearsI slowly recovered topper a number of years to a where I could work a desk job but be home and in bed at 7.30 or 8.30 and most of the weekend.In context ↗ |
| 2012 | went on a plant-based diet and returned to normalThat was until 2012 when I went on a plant based diet. And back to normal.In context ↗ |
| January 2022 | long COVID after first COVID infection; almost bedridden with breathing problemsAt the time I could not even get to the bathroom or have a shower without very bad SOB.In context ↗ |
| May 2022 | second COVID infection put recovery backBut it's definitely put my recovery way back.In context ↗ |
| June 2022 | recovered to about 90% with supplements and stronger antihistaminesI am probably 90% recovered now. I went out last night for the first time in 6 monthsIn context ↗ |
| late 2022 | Dr Brooke Goldner raw-food protocol; back to normal within weeksI was 100% better within 3 weeks.In context ↗ |
| May 2024 | living normally; later COVID infections resolved like a normal illnessThe last 2 times have been medically normal recovery meaning I was well within a month.In context ↗ |
Adverse events
- “I had very bad neuopathy after taking all that B6 ... I personally nearly died from it about 5 years ago” Nerve pain
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
STILL had decades of PEM
In context ↗ - Brain fog
I was too tired and brain dead for those kind of conversations
In context ↗ - Breathlessness
I had a lot of breathing issues and was almost bedridden
In context ↗ - Sleep problems
up to 20 hours sleep a day
In context ↗ - Muscle weakness
my muscles were so weak that that became an issue in itself
In context ↗ - Anxiety & low mood
I've suggested from depression at times in my life too
In context ↗
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