Bedridden for weeks with ME/CFS, now recovered after levothyroxine
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 10 years
- Last post
- Sep 2018
In their words
- Condition: ME/CFS
It hasn't done anything to my cfs but I am gaining some much needed muscle mass
In context ↗ - At worst: Mild
It took me many years to get through, but slowing down my study did enable me to make it.
In context ↗ - Now: Recovered
I am now almost fully healed after 10 years of soul crushing fatigue.
In context ↗ - Began after: another virus
It started suddenly after a very heavy infection that had me bedridden for weeks.
Read from 10 of their posts and comments; links to the 7 this page draws on
Summary
Bramble 44936 had fatigue for a decade after a heavy infection left them bedridden for weeks, finishing a degree over many years with pacing, and had brain fog, PEM-like reactions and sleep problems. A slightly raised TSH on an eight-year-old blood test led to levothyroxine, which eased fatigue within about three months. By September 2018 they were almost fully healed, needing yearly thyroid checks; a 75 mcg dose had caused palpitations.
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What they tried
What they credit
Also tried
Their words about each treatment
- slowing down my study · Helped
slowing down my study did enable me to make it
In context ↗ - vitamin supplements · Not said
I did not take any medicine, some times some vitamin suplements
In context ↗ - Dymatize iso100 whey protein · No change
I read that post and am trying it too. It hasn't done anything to my cfs but I am gaining some much needed muscle mass
In context ↗ - garmin vivomove HR · Helped
to me is the most important measurement in pacing myself, the stress measurement
In context ↗ - Levothyroxine · Helped a lot
she prescribed me a low dose of levothroxine. ... Now about 3 months later it actually seems to be working.
In context ↗
Approaches: Pacing · Thyroid hormones
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| ~2008 | sudden onset after a heavy infection, bedridden for weeksIt started suddenly after a very heavy infection that had me bedridden for weeks. Anything I did gave me a PEM like reaction.In context ↗ | |
| February 2018 | less fatigued and improving weekly on levothyroxineI'm most defenitely less fatigued ... Last week I worked a couple of hours on 6 days of the week.In context ↗ | Levothyroxine (Synthroid) |
| September 2018 | almost fully healed, still needing yearly thyroid checksI am now almost fully healed after 10 years of soul crushing fatigue.In context ↗ | Levothyroxine (Synthroid) |
Adverse events
- Levothyroxine (Synthroid)“I tried 75 but that was too much. The higher dose gave me heart palpatations” In context ↗ Heart rhythm problems
- Levothyroxine (Synthroid)“made me feel really unwell in warm/hot temperatures” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
loads of brain fog at the moment
In context ↗ - Post-exertional malaise
Anything I did gave me a PEM like reaction.
In context ↗ - Sleep problems
Yes I totally do. To the extent where I am asking myself if I don't have a sleeping disorder instead of CFS.
In context ↗
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